Research Ideas  

Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Active Studies

Rare IBD Characteristics Study

Description: This study will look at how genes may be linked to the development of rare IBD characteristics: eye inflammation, arthritis of the spine, colon cancer, and skin ulceration.
Researcher: Dr. Balfour Sartor from UNC School of Medicine Dr. Dermot McGovern from Cedars-Sinai Medical Center
Who can participate?
Individuals with inflammatory bowel diseases who have ever been diagnosed with eye inflammation (uveitis, scleritis, episcleritis), arthritis of the spine (ankylosing spondylitis), colon cancer, or skin ulceration (pyoderma gangrenosum) can participate.
What would I have to do?

Fill out a form with your doctor’s contact information and provide a small saliva sample via U.S. mail. You will be mailed the supplies you need to provide this sample.


Genetic and Environmental Risks for Inflammatory Bowel Disease Study

Description: This study is looking at genes and environmental factors, such as diet and gut bacteria, that may be associated with developing Crohn’s disease or ulcerative colitis.
Researcher: Dr. Ramnik Xavier and Dr. Deanna Nguyen at the MGH Crohn’s and Colitis Center
Who can participate?
This study aims to recruit at least two first-degree family members (you and a parent, sibling, or offspring aged 7 years and older) with inflammatory bowel disease and at least one family member without any autoimmune diseases.
What would I have to do?

Participants in this study will be asked to:

• Provide a saliva or blood sample

• Provide an optional urine and stool sample

• Complete study related activities by phone, email, or postal service

Genetics , Environment

Defining the Genetic Architecture of Crohn’s Disease in the Ashkenazi Jewish Population

Description: This study will look how Ashkenazim specific genetic variants contribute to Crohn’s disease.
Researcher: Dr. Judy Cho at the Icahn School of Medicine at Mount Sinai, New York.
Who can participate?
Adult members of CCFA Partners who report Ashkenazi Jewish ancestry
What would I have to do?

Participants in this study will be asked to:

• Provide a saliva sample

• Provide IBD-related medical and family history

• Complete study-related activities by phone, email, or postal service.


Multi-Center African American IBD Study (MAAIS)

Description: This study is looking at genes and environmental factors that may be associated with developing inflammatory bowel disease.
Researcher: Dr. Steven Brant from Johns Hopkins School of Medicine
Who can participate?
Adult members of CCFA Partners who self-identify as being African American
What would I have to do?

Participants in this study will be asked to sign a consent form, fill out a written questionnaire and contribute about 3 tablespoons of blood. Your spouse or friend that does not have IBD may also be eligible to join this study as a healthy volunteer. Compensation includes $40.00 for all participants for enrollment. An additional $10.00 referral fee may also be available.

Genetics , Environment

Contact us at

IBD Partners will notify you via email if you qualify for any of the studies described here.

External Research Studies

Published Studies VIEW ALL
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