Research Ideas  

Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Active Studies

Symptom Clusters in Adults with Inflammatory Bowel Disease

Description: This study will look at common IBD symptoms (e.g., pain, fatigue, sleep disturbance, depression, and anxiety) and aim to better understand clusters of symptoms that appear in some patients.
Researcher: Samantha Conley School of Nursing at Yale University
Who can participate?
Adult members of CCFA Partners with Ulcerative Colitis or Crohn’s disease who have completed at least two consecutive surveys. Note: Partners who are pregnant will not be eligible for this study. Partners who have had a total colectomy will also not be eligible.
What would I have to do?

If you meet the eligibility criteria described above, the data you provide in your regular 6-month Partners surveys will automatically be included in this research study. You don’t have to do anything else.


Contact us at

IBD Partners will notify you via email if you qualify for any of the studies described here.

External Research Studies

Published Studies VIEW ALL
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