Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

What are the possibilities in QBECO SSI in the treatment of IBD?

It's a fundamentally different treatment in that it doesn't suppress it, it helps modulate it.

Alternative Therapies
last activity 5 days ago
0    0
Proposed Idea              

Is Low Dose Allergy Immunotherapy helpful to people diagnosed with IBD?

It's described as a safe approach to healing auto-immune illnesses.

Alternative Therapies
last activity 5 days ago
0    0
Proposed Idea              

Are there potential therapies for IBD arising from the use of stem cells?

Stem Cell therapy is showing promise for many medical issues. It would be nice if it applies to IBD

Alternative Therapies
last activity 6 days ago
0    0
Proposed Idea              

Is there a correlation between Adverse Childhood Experiences (ACEs) and Crohn's Disease later in life.

In my understanding there is a strong correlation between ACEs and auto-immune illnesses. I wonder if the same correlation is maintained when focusing on Crohn's Disease.

Environment
last activity 7 days ago
0    0
Diet
last activity 11 days ago
0    0
Proposed Idea              

Has there been any research on proton pump inhibitors causing IBD

Wondering if many people taking these drugs have this disease

Medications
last activity 11 days ago
0    0
Proposed Idea              

What is the nationwide average cost of Remicade per 5mg/kg? It seems that this number fluctuates immensely from state-to-state. Would be curious what they pay in Canada too.

When I moved from NYC to Vermont, my Remicade quadrupled. I receive 10mg/kg, so 800mg, every 2 months. In NYC this would cost me around $6k each time. In Vermont it's $24k each time. Very concerning.

Medications
last activity 13 days ago
0    0
Proposed Idea              

Why is it that crohns patients can eat some foods but not others? And why does it differ from person to person?

I think there should be more research done on this because it affects our day to day lives and a lot of the time its trial and error with food after being diagnosed. It could be helpful to know a general idea of foods that crohns patients should avoid or if certain foods affect the gut and inflammation. At this point its like crohns patients are in limbo, unable to understand why certain foods affect them and others dont.

Research Methods
last activity 2 months ago
0    0
Proposed Idea              

What is the transit time between mouth and anus?

It is difficult to know what foods affect my gut when I don't know the transit time from mouth to anus. The transit time, of course, is affected by the amount of resection, strictures, etc.

Other
last activity 2 months ago
0    0
Proposed Idea              

Could virtual colonoscopy replace conventional colonoscopy as a routine method of assessment for patients in remission?

Virtual colonoscopy is less invasive, reducing the risk of bowel perforation and eliminating the need for anesthesia.

Procedures And Testing
last activity about 2 months ago
1    0

Propose Research Idea


Published Studies VIEW ALL
High Patient Activation Is Associated With Remission in Patients With Inflammatory Bowel Disease

Read Study
Social Media Use and Preferences in Patients With Inflammatory Bowel Disease

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Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network - Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network

Read Study

Active Studies VIEW ALL
The Effects of Antidepressant Medication and Social Support on Disease Progression in IBD Patients

Read Study
Symptom Clusters in Adults with Inflammatory Bowel Disease

Read Study
Psychological Factors Associated with Adherence to Oral Treatment in IBD

Read Study

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