In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
It's a fundamentally different treatment in that it doesn't suppress it, it helps modulate it.
It's described as a safe approach to healing auto-immune illnesses.
Stem Cell therapy is showing promise for many medical issues. It would be nice if it applies to IBD
Is there a correlation between Adverse Childhood Experiences (ACEs) and Crohn's Disease later in life.
In my understanding there is a strong correlation between ACEs and auto-immune illnesses. I wonder if the same correlation is maintained when focusing on Crohn's Disease.
Wondering if many people taking these drugs have this disease
What is the nationwide average cost of Remicade per 5mg/kg? It seems that this number fluctuates immensely from state-to-state. Would be curious what they pay in Canada too.
When I moved from NYC to Vermont, my Remicade quadrupled. I receive 10mg/kg, so 800mg, every 2 months. In NYC this would cost me around $6k each time. In Vermont it's $24k each time. Very concerning.
Why is it that crohns patients can eat some foods but not others? And why does it differ from person to person?
I think there should be more research done on this because it affects our day to day lives and a lot of the time its trial and error with food after being diagnosed. It could be helpful to know a general idea of foods that crohns patients should avoid or if certain foods affect the gut and inflammation. At this point its like crohns patients are in limbo, unable to understand why certain foods affect them and others dont.
Could virtual colonoscopy replace conventional colonoscopy as a routine method of assessment for patients in remission?
Virtual colonoscopy is less invasive, reducing the risk of bowel perforation and eliminating the need for anesthesia.
Social Media Use and Preferences in Patients With Inflammatory Bowel Disease
Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network - Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network