Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Is there a correlation between UC and poor circulation in feet and/or hands?

Ever since my diagnosis my feet have felt like ice blocks. It can be very painful sometimes. I am wondering if they are related.

Other
last activity about 1 month ago
13    2

What percentage of people who have UC/Crohn's have also been diagnosed with Fibromyalgia? In addition, how long after having UC/Crohn's did Fibromyalgia symptoms begin?

There are many overlapping symptoms between UC/Crohn's and Fibromyalgia. For myself I developed Fibromyalgia after a severe UC flare. I believe chronic pain and fatigue go hand and hand with UC/Crohn's.

Other
last activity 7 months ago
25    5
Proposed Idea              

Can IBD be related to any back pain/pelvis/sacrum?

Other
last activity 7 months ago
5    2
Proposed Idea              

What neurological complications are associated with Crohn's and Ulcerative Colitis?

By monitoring several IBD forums, I see that people frequently have questions about various neurological complications like numbness, tingling, nerve pains etc. Current research is mixed on whether or not there are neurological extra-intestinal manifestations of IBD.

Other
last activity almost 2 years ago
0    1
Proposed Idea              

Look at how to increase earli r detection in teens and young adults.

I thinknit is hard for some teens to talk about their bowel movements and can go for years without diagnosis. Ii had the liq stools, abd pain, for 15 years, followed by another 10 years. It went unreported Thru 6 years of bloody stools, before i was brave enough to say anything.

Other
last activity almost 5 years ago
1    0

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