Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Do prior authorizations required by insurance companies cause delays in patient therapies, and can these delays be correlated in an increased risk of treatment failures or increased disease activity?

In my experience with IBD, I have had several experiences where my insurance companies PA requirements have delayed my therapies weeks or months. I believe that this may lead to increased disease activity and poorer treatment outcomes or increased risk of treatment failure. If studies can effectively demonstrate this relationship, perhaps insurance companies will recognize the potential increased costs of therapy delays that result from the PA process and will strive to improve the expediency of their PA processes.

Other
last activity 14 days ago
50    8
Proposed Idea              

Look for correlation between IBD & post nasal drip (PND).

Several family members with Chrones and UC also suffered from post nasal drop.

Other
last activity 7 months ago
27    4

Comorbidities of Neurological conditions and IBD

Recent data (Kigerl et al. 2016 (JEM), Bourassa et al. (Neuroscience Letters) and others) have suggested that dysbiosis in the gut, similar to that observed in IBD can affect both recovery following neurological injury and general neurological health. Examining reported levels of comorbidity could provide insights into whether further study of these relationships is warranted. This would, hopefully, lead to better outcomes for both neurology and IBD patients.

Other
last activity 10 months ago
5    3
Proposed Idea               Best Fit for Others

Can a history of taking a lot of antibiotics result in wiping out your good gut bacteria and lead to IBD? Can probiitics or stool transplants protect from getting IBD or treat IBD?

Over prescribing of antibiotics starting in childhood has been a documented problem. If this could be contributing to the incidence of IBD, that would be important to know as a further deterrent. Also knowing what to do for patients who have no choice but to take a lot of antibiotics would be helpful. And if this is a subtype of causality, it could be specifically targeted for prevention and treatment.

Other
last activity about 2 years ago
12    2

Do depressed IBD patients receive treatment for their depression?

In light of recent data from Partners showing a link between depression and a subsequent flare, im curious how many patients seek/receive treatment so as to minimize the risk of a flare. For those that don't, I wonder why and what barriers might impact access to care.

Other
last activity almost 3 years ago
5    3

Can positive emotions favorably influence IBD patient status?

Research tends to focus on negative emotional state (depression) and the potential downside. Work by Dr B. Fredrickson shows positive emotions can provide favorable health impact and has developed a simple on line tool to measure positive emotions which could be incorporated into this site to do research going forward.

Other
last activity over 2 years ago
8    1
Proposed Idea              

Can fistulae (particularly perineal/perianal) be caused by holding in BMs for long stretches of time? Specifically, is this occurring in children and teens with IBD?

I had diarrhea from age 11 (1971) without a diagnosis until 1978 when I had a perineal abscess drained by a gynecologist in the hospital. I could see that it was a fistula (dad had medical books around the house). About a week later, while on Cleocin and Keflex, my colon perforated and I almost died before expl lap and temporary colostomy to "rest" my gut. I'd had 7 years of public school, holding in the stool all day, until I could get home. I was not comfortable having diarrhea at school, either because of complaints from kids or smokers who dominated the bathrooms.

Other
last activity almost 3 years ago
2    2
Proposed Idea              

What is the most common cause of death in IBD patients?

I am guessing it's complications and/or weight loss or failure of the immune system. Wondering if this is trackable in order to develop prevention ideas.

Other
last activity about 1 month ago
2    0

I propose to look at the incidence of periodontal disease in IBD patients, and to examine if there is any correlation to the disease itself, or to medications used for disease control.

Anecdotally, there seems to be a positive correlation; however, hard data seems non-existent. With the known relationship between periodontal disease and heart disease, it would be important for IBD patients to know if this is an issue they need to stay on top of.

Other
last activity almost 2 years ago
6    1

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