Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Does IBD impact the absorption and pharmacokinetics or oral medications?

IBD can have a significant impact on motility and gut absorption. Most medication pharmacokinetic studies are completed using healthy volunteers. If there is a significant impact on oral medication absorption/pharmacokinetics with active IBD, this may have an important role in determining a safe and effective dose.

Medications
last activity 3 months ago
52    9
Proposed Idea              

Has low dose Naltrexone been studied for efficacy in IBD?

I take it now on the advice of my functional medicine doctor, and think it helps me...

Medications
last activity 10 months ago
12    2
Proposed Idea              

How common is the incidence of Skin Cancer in IBD patience on 6mp or Mercaptupurine!

Suffered two Incidence of Squamis Cell Carcinoma of the Lower Lip since being on 6mp

Medications
last activity about 2 years ago
1    2
Proposed Idea              

Is there a correlation between the use of NSAIDS (Ibuprofen) or other medications known to cause a "leaky gut" and the onset/development of IBD?

I took a large amount of Ibuprofen throughout my teen years for migraines. I have been told that taking Ibuprofen now can cause me to come out of remission due to causing a leaky gut and so I am curious to see if these types of medications can cause or trigger the onset of IBD in adolescents or in patient who chronically take these forms of medications.

Medications
last activity about 2 months ago
4    0
Proposed Idea              

What is the success of remission for people* who have surgery, or resection, versus those who are treated by medications only? (*Note: people who qualify for surgery)

I heard from a parent of a teen with IBD that the doctor wanted to avoid surgery. I have been in remission for years after I had a resection.

Medications
last activity about 3 years ago
9    1
Medications
last activity 11 months ago
0    0
Proposed Idea              

Has there been any research on proton pump inhibitors causing IBD

Wondering if many people taking these drugs have this disease

Medications
last activity over 1 year ago
0    0
Proposed Idea              

Do 5-ASA drugs cause kidney damage?

I took Pentasa for over 10 years and when my creatinine levels got high I saw a nephrologist who said this damage was caused by drugs like Pentasa. My GI said this is an area of disagreement. I would like this researched so the 5-ASA drugs can be discontinued as a long term IBD treatment.

Medications
last activity about 2 years ago
0    0

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Published Studies VIEW ALL
Trends and Characteristics of Clinical Trials Participation for Inflammatory Bowel Disease in the United States: A Report From IBD Partners

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Symptom Clusters in Adults with Inflammatory Bowel Disease

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Prevalence and impact of inflammatory bowel disease-irritable bowel syndrome (IBD-IBS) on patient reported outcomes in CCFA Partners

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Active Studies VIEW ALL
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