Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Do prior authorizations required by insurance companies cause delays in patient therapies, and can these delays be correlated in an increased risk of treatment failures or increased disease activity?

In my experience with IBD, I have had several experiences where my insurance companies PA requirements have delayed my therapies weeks or months. I believe that this may lead to increased disease activity and poorer treatment outcomes or increased risk of treatment failure. If studies can effectively demonstrate this relationship, perhaps insurance companies will recognize the potential increased costs of therapy delays that result from the PA process and will strive to improve the expediency of their PA processes.

Other
last activity 22 days ago
54    8

What is the long term effectiveness of bowel resection as a treatment? What % of people are in remission at intervals of decades following surgery? What factors lead to longer periods of remission?

I have the experience of a surgery in about 1972 and continue to be in remission. Knowing more about why some surgery is sucessful like this seems like it would help inform treatment choices.

Procedures And Testing
last activity 22 days ago
36    7
Proposed Idea              

Is Crohn's a genetic or environmental related disease?

Other
last activity 27 days ago
24    3

What is the comparative safety and efficacy of natural supplements (vitamin D, fish oil, turmeric) commonly used in IBD versus prescription medications?

Many of us try natural supplements instead of or in addition to prescription medications in the management of IBD. Are natural supplement products more safe or effective when compared to prescription medications? Is combining natural supplements with prescription treatments more effective?

Alternative Therapies
last activity 3 months ago
30    4

Can improving the diversity in the gut microbiome in UC patients by diet have an impact on reducing inflammation, improving symptoms, and mental health

Because we know that the microbiome of UC patients is different than healthy controls and in dysbiosis. Technologies are now available at much lower costs than years ago.

Microbiome
last activity 5 months ago
29    2
Proposed Idea              

Female menstrual cycle and the worsening of symptoms with each cycle. Is this hormone related and would contraception ease symptoms?

My monthly cycle can often catapult me back into a full on flare and at the least i see a deterioration in my symptoms at this time of my cycle

Women's Health
last activity 8 months ago
32    3
Proposed Idea               Best Fit for Others

Can a history of taking a lot of antibiotics result in wiping out your good gut bacteria and lead to IBD? Can probiitics or stool transplants protect from getting IBD or treat IBD?

Over prescribing of antibiotics starting in childhood has been a documented problem. If this could be contributing to the incidence of IBD, that would be important to know as a further deterrent. Also knowing what to do for patients who have no choice but to take a lot of antibiotics would be helpful. And if this is a subtype of causality, it could be specifically targeted for prevention and treatment.

Other
last activity over 2 years ago
12    2
Proposed Idea              

Which medications are more effective at treating Crohn's disease?

Multiple doctors have recommended that I start treatment for my Crohn's disease. There are many options from diet change, steroids, and immonosuapresants. My CD is very active and I have already had two surgeries.

Medications
last activity over 1 year ago
4    2

What is the efficacy of the Specific Carbohydrate Diet on Crohn's/UC?

When I was diagnosed with Crohn's, my GI told me that diets don't work. After my GI recommended Humira, I decided to try SCD before I tried such a potent medication. The diet started working within days and, by the end of the first month, most of my symptoms were gone. Today it's been over a year and a half since I've had any significant symptoms. I would like to know if SCD works for others and, if so, what percentage of patients.

Diet
last activity about 1 month ago
6    6

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Published Studies VIEW ALL
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

Read Study
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

Read Study
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease

Read Study

Active Studies VIEW ALL
Your search did not match any active studies.

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