In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
The numbers of IBD patients using medicinal marijuana is increasing at a rapid pace and many patients who use it feel that it improves their quality of life. We need research-based evidence to determine the underlying connection. Does it improve symptoms that make patients feel better (pain, loss of appetite, decreased stress and increased sleep), or does it actually have an anti-inflammatory effect on the gut?
Ever since my diagnosis my feet have felt like ice blocks. It can be very painful sometimes. I am wondering if they are related.
What percentage of people who have UC/Crohn's have also been diagnosed with Fibromyalgia? In addition, how long after having UC/Crohn's did Fibromyalgia symptoms begin?
There are many overlapping symptoms between UC/Crohn's and Fibromyalgia. For myself I developed Fibromyalgia after a severe UC flare. I believe chronic pain and fatigue go hand and hand with UC/Crohn's.
It took 16 years to verify my Cohn's, from age 13-29 years. Had all sorts of tests and was treated like I was crazy. Spent a month in treatment due to anorexia because eating was so painful. Diagnosed by having exploratory surgery. Because of that I had malnutrition, lost all my teeth and suffered way too long.
Is there a correlation between women's monthly menstruation and IBD-related flares? If there is a correlation between these two event, what can be done to reduce flares and/or reduce flares severity?
As a woman with IBD, I have experienced a once monthly abdominal pain since being diagnosed with IBD that feels like it is intestinal and subsides after one part of the cycle concludes. GI's have confirmed they have noticed women w/IBD often complain of IBD pain at specific times in the menstrual cycle.
By monitoring several IBD forums, I see that people frequently have questions about various neurological complications like numbness, tingling, nerve pains etc. Current research is mixed on whether or not there are neurological extra-intestinal manifestations of IBD.
I have been using isagenix on and off for the past year. It has really help improve both my symptoms, pain, and energy levels since being diagnosed with crohns about 6 years ago.
In 1960 I had very intensive pain on my abdomen. After all attempts by doctors to stop the pain failed the next solution was to remove the inflamed portion of the intestines. My mom wanted the opinion of a doctor in Milan, Italy. We traveled there and the doctor touched my pain area and I fainted. He had a prescription ready when I woke up while my mom was attending me. He prescribed 3 shots of the following medications: Methionine, Vitamin B-12, and Vitamin K. A two week treatment and I woke up following the treatment brand new. No pain, no acid stomach or reflux, no allergies toward foods, cristal clear brain and eyes, and lasted for 3 years where I ate everything. Looking back a clean Liver controlled Crohn’s disease. I almost died from the treatment of Metacatpurine an immune lowering Crohn’s pills. If I wouldn’t have stop taking them two months before my stomach flu, that the entire office had, the doctor at the emergency room said if the pills were in my system he couldn’t save me. Why lower the immune system when a clean liver can control the disease. I am controlling Crohn’s and ulcerative colitis with Liver supplements and diet. The Liver loves vegetables specifically raw vegetables. I can stop inflammation pain within one hour with raw vegetables smoothies every time with no variation. I do consume protein with vegetables in smaller quantities. The main source of impact for the disease is flour products such as bread, sugars, and carbohydrates since they convert to sugars. I had 50 years of acid stomach and reflux where no doctor was able to stop it. But as I changed my diet and removed bread and carbohydrates from my diet the symptoms completely stopped. That to me was much better than Crohn’s problems since the acidity produced ulcers in my stomach and esophagus where I couldn’t swallow any more. I hope this information will create a new view in treating Crohn’s disease and many other diseases since the Liver seem to control our health. Thank you for consideration.
A great deal of research has been done that showed that dog visits to hospitals boosted mood and reduced pain, anxiety and depression. Does having a dog reduce pain and depression for Crohn's or IBD?
I have had reactions to the biologics and I am concerned about the risk of cancer, as it runs in my family. I have also had reactions to pill medications so my treatment options are limited.
Inflammatory Bowel Diseases Can Adversely Impact Domains of Sexual Function Such as Satisfaction with Sex Life
Symptom Clusters in Adults with Inflammatory Bowel Disease