Research Ideas  

×
Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

Show More

You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Can fistulae (particularly perineal/perianal) be caused by holding in BMs for long stretches of time? Specifically, is this occurring in children and teens with IBD?

I had diarrhea from age 11 (1971) without a diagnosis until 1978 when I had a perineal abscess drained by a gynecologist in the hospital. I could see that it was a fistula (dad had medical books around the house). About a week later, while on Cleocin and Keflex, my colon perforated and I almost died before expl lap and temporary colostomy to "rest" my gut. I'd had 7 years of public school, holding in the stool all day, until I could get home. I was not comfortable having diarrhea at school, either because of complaints from kids or smokers who dominated the bathrooms.

Other
last activity about 2 years ago
2    2
Proposed Idea              

What is the reason for the increased Incidence of Ibd for Jews?

It would be useful for those of us with jewish ancestry for our kids

Genetics
last activity almost 3 years ago
4    1
Studied              

Can we predict future IBD diagnosis based on c-section vs vaginal delivery of babies?

As a UC patient, I would do anything to try to prevent my kids from suffering from IBD as I have. I wish I could have known if the very start of their lives might have some impact on their possible IBD futures.

Women's Health
last activity about 3 years ago
4    1

Propose Research Idea


Published Studies VIEW ALL
Body Image Dissatisfaction in Pediatric Patients with Inflammatory Bowel Diseases

Read Study
Development of CCFA Partners Kids & Teens: an Internet-Based Cohort of Pediatric IBD

Read Study

Active Studies VIEW ALL
Your search did not match any active studies.

Want to Join the Network?

Do you have Crohn's disease or ulcerative colitis? Join other patients and the IBD research community to help us all learn more about IBD together.

Join

Already a Member? Sign in.
Are you a researcher? Click here.
Under age 18? Join IBD Partners Kids & Teens.