Research Ideas  

Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

I propose researching medical cannabis for both symptom management and clinical remission.

Several studies have already been done in Israel at the Meir Institute with very promising results. A placebo controlled study with medication-resistant patients showed a remission rate approximately the same as leading medications. (~50% clinical remission.) Creating safer medications that are also less expensive than current medications should be a high priority, particularly given the promising results, both clinical and anecdotal, and the rising approval of medical cannabis across the US.

Alternative Therapies
last activity 8 months ago
39    1
Proposed Idea              

Research on how many people start out with IBD and then get one or more Auto Immune illnesses as well as multiple surgery complications from IBD/Ostomy and/or other Auto Immune illnesses

I've seen it happen over 100 times in all my years as an IBD advocate. Patients have IBD & one or more such as MS, or Lupus, or RA, Fibromyalgia, Diabetes, Lyme's, and more. I myself have Crohn's, Uveitis, Raynaud's & Acne Rosacea. Some of us are further compromised or vulnerable due to multiple surgeries and aging (females) complications such as Osteoporosis, adhesion formation, and more. This leaps off into mental health, financial stability and sexual functions.

Research Methods
last activity 5 months ago
1    0
Proposed Idea              

What is the effect of vagus nerve stimulation in ulcerative colitis? What is the effect of an implanted VNS device on UC? What is the effect of a transcutaneous VNS device on UC?

Vagus nerve stimulation has been studied in Crohn's disease with promising results, and needs to be studied in ulcerative colitis, so that all patients with IBD may have access to this new therapy that has shown success even for patients who did not succeed on oral or IV medication. For example:

last activity 10 months ago
1    0
Proposed Idea              

Are there potential therapies for IBD arising from the use of stem cells?

Stem Cell therapy is showing promise for many medical issues. It would be nice if it applies to IBD

Alternative Therapies
last activity over 1 year ago
0    0

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Published Studies VIEW ALL
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

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Evaluation of Gastrointestinal Patient Reported Outcomes Measurement Information System (GI-PROMIS) Symptom Scales in Subjects with Inflammatory Bowel Diseases

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Evaluation of Gastrointestinal Patient Reported Outcomes Measurement Information System (GI-PROMIS) Symptom Scales in Patients with Crohn's Disease in CCFA Partners

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Active Studies VIEW ALL
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