Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Studied              

Does gluten have an impact on symptoms and progression of IBD?

I have read a lot of anecdotal stories and watched many documentaries about how completely removing gluten from the diet has improved, and sometimes reversed, many health ailments such as high blood pressure, high cholesterol, diabetes, fibromyalgia, MS, IBD, and more. I also read the results of the previous CCFA partners survey that indicated improvement of symptoms by patients following a gluten free lifestyle. I would love to see a more in-depth, controlled study of this topic. Most doctors I have visited have never recommended a restrictive diet to improve my symptoms. The only person to do this is my current nutritionist who is able to control her UC by eliminating gluten. Just a few of my resources have been the book Wheat Belly by Dr. William Davis and the documentaries Forks Over Knives and Fed Up.

Diet
last activity about 1 year ago
6    3

We need to develop a better understanding of how nutrition as a whole affects IBD and put together a more comprehensive diet plan that includes the definite triggers.

Food has always been a contributing factor in my flares of Crohn's Disease, but the original recommendation by my doctors 20 years ago has turned out to be not only false, but the complete opposite of what I needed to be eating for my illness. I have recently started working on figuring out a better plan for my eating habits and have discovered a few things that I would like validated by research.

Diet
last activity 10 months ago
45    2
Proposed Idea              

Creation of a test to verify or deny IBD in persons struggling with symptoms

It took 16 years to verify my Cohn's, from age 13-29 years. Had all sorts of tests and was treated like I was crazy. Spent a month in treatment due to anorexia because eating was so painful. Diagnosed by having exploratory surgery. Because of that I had malnutrition, lost all my teeth and suffered way too long.

Procedures And Testing
last activity over 3 years ago
4    3
Proposed Idea              

What is the nutritional impact (loss of nutrients) which a person with IBD (Ulcerative Colitis) experiences when their Colitis is in remission.

I have been in remission for 6 years, yet I seem to not be absorbing Potassium, producing Vitamin D - even though I work outdoors year round in a city that claims 360 days of sunshine, and seem to not be absorbing several other minerals. I suffer from chronic continuous calcium oxalate kidney stones due to calcium binding with oxalate instead of magnesium citrate or potassium citrate. The nutritional absorption in the colon would be especially useful for drs to treat patients like me as medication absorption also seems to be an issue.

Diet
last activity over 2 years ago
16    0
Proposed Idea               Best Fit for Others

Develop nutritionally sound and bio-available nutritional supplement(s) addressing long term health issues associated with poor vitamin/ mineral/ nutrient absorption due to rapid transit time, medication and/ or scarring of the intestinal lining.

Long term chronic IBD often includes development of nutritional deficiencies due to diet, eating patterns, medication side effects and intestinal scarring which are difficult to overcome using traditional supplements due to low bio-availability, supplement form, difficulty incorporating into liquid, soft or normal diet, nutritional completness.

Diet
last activity about 4 years ago
15    1
Proposed Idea              

Can GI tract be mapped to identify locations of specific nutrient absorption & areas of disease activity/damage be studied to determine likely deficiencies & appropriate supplements for individuals?

This could allow patients and providers a better understanding of what their specific disease damage and activity could be affecting and allow targeted vitamin/mineral nutritional supplementation to be prescribed, thus preventing or more effectively treating systemic complications of IBD and associated nutritional deficiencies affects on the body.

Other
last activity almost 2 years ago
3    0
Proposed Idea              

How does a nutritional cleanse, like isagenix, impact long-term crohns disease and symptoms?

I have been using isagenix on and off for the past year. It has really help improve both my symptoms, pain, and energy levels since being diagnosed with crohns about 6 years ago.

Diet
last activity over 3 years ago
2    0
Proposed Idea              

In 2014 I went into A-FIB because I was deprived of vitamins and nutrients in my system. Since then I am taking very powerful supplements that work! Does this happen to many Crohns patients?

I was taking many supplements and nutrients at the time. I had no warning signs that this could happen. P.S. the cardiologist said my heart was healthy. It's important for patients to know, that proper nutrition is a must!

Other
last activity over 1 year ago
0    0
Proposed Idea              

What link is there between nutritional deficiencies in pregnant women with IBD and their children's health: dental cavities at young age, ADHD, etc?

Women's Health
last activity about 3 years ago
1    0

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Published Studies VIEW ALL
Obesity Is Associated with Worse Disease Activity in Patients with Inflammatory Bowel Diseases: an Internet Based Cohort Study

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