Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

What diet (i.e. plant based, whole food/vegan) is most likely to help IBD patients achieve and retain remission?

Many medications and treatments for IBD are costly and long-term commitments. Dietary and lifestyle changes are a crucial first line of defense and often a more financially sustainable intervention. Patients and medical practitioners need more information about health-supportive diets.

Diet
last activity 2 months ago
85    17
Proposed Idea              

Do prior authorizations required by insurance companies cause delays in patient therapies, and can these delays be correlated in an increased risk of treatment failures or increased disease activity?

In my experience with IBD, I have had several experiences where my insurance companies PA requirements have delayed my therapies weeks or months. I believe that this may lead to increased disease activity and poorer treatment outcomes or increased risk of treatment failure. If studies can effectively demonstrate this relationship, perhaps insurance companies will recognize the potential increased costs of therapy delays that result from the PA process and will strive to improve the expediency of their PA processes.

Other
last activity 16 days ago
50    8

What is the long term effectiveness of bowel resection as a treatment? What % of people are in remission at intervals of decades following surgery? What factors lead to longer periods of remission?

I have the experience of a surgery in about 1972 and continue to be in remission. Knowing more about why some surgery is sucessful like this seems like it would help inform treatment choices.

Procedures And Testing
last activity 16 days ago
35    7

What kinds of diets are recommended for Crohn's patients?

Diet
last activity 3 months ago
43    9

What is the effectiveness of CBDs in treating a IBD flair or in preventing one?

CBDs seen to be a readily available and benign treatment for inflammation of many types. They may prove to be a treatment much easier on the body than the current course of drugs.

Medications
last activity 4 months ago
20    3

What research has been done on using CBD extracted from marijuana or on marijuana in the treatment of various IBD (Crohn's, Colitis, etc)? Are there positive correlations to it treating the disease?

Gets users talking about potential alternative treatments, as well as treatments that may have far less significant side effects when compared to biologics and steroids.

Alternative Therapies
last activity 2 months ago
64    9
Proposed Idea              

Is Crohn's a genetic or environmental related disease?

Other
last activity 7 months ago
23    3

Can IBD lead to the formation of depression/anxiety?

I've noticed on Twitter that there is a need of psychologists that understand how IBD can effect one's mental state of being.

Lifestyle
last activity 10 months ago
20    3

What is the comparative safety and efficacy of natural supplements (vitamin D, fish oil, turmeric) commonly used in IBD versus prescription medications?

Many of us try natural supplements instead of or in addition to prescription medications in the management of IBD. Are natural supplement products more safe or effective when compared to prescription medications? Is combining natural supplements with prescription treatments more effective?

Alternative Therapies
last activity about 2 months ago
30    4
Studied              

Does gluten have an impact on symptoms and progression of IBD?

I have read a lot of anecdotal stories and watched many documentaries about how completely removing gluten from the diet has improved, and sometimes reversed, many health ailments such as high blood pressure, high cholesterol, diabetes, fibromyalgia, MS, IBD, and more. I also read the results of the previous CCFA partners survey that indicated improvement of symptoms by patients following a gluten free lifestyle. I would love to see a more in-depth, controlled study of this topic. Most doctors I have visited have never recommended a restrictive diet to improve my symptoms. The only person to do this is my current nutritionist who is able to control her UC by eliminating gluten. Just a few of my resources have been the book Wheat Belly by Dr. William Davis and the documentaries Forks Over Knives and Fed Up.

Diet
last activity almost 2 years ago
6    3

Propose Research Idea


Published Studies VIEW ALL
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

Read Study
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

Read Study
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease

Read Study

Active Studies VIEW ALL
Your search did not match any active studies.

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