Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

What is the relationship between IBD and hormones? How do the two impact each other?

I have been alternating visits with my GI doc and gynecologist for over a year. We are still having trouble pin pointing if IBD, IBS, or hormones are causing my symptoms. My feeling is that it is all three, and they are causually linked.

Women's Health
last activity 3 months ago
17    4

What portion of IBD patients also have IBS? How can IBS be accurately diagnosed in patients with IBD? How can patients/clinicians identify symptoms due to IBD versus IBS, and what treatments are best?

Irratable bowel syndrome (IBS) has many of the same symptoms as inflammatory bowel disease (IBD). Many patients with IBD may also experience IBS making it difficult to know how to treat given that the two conditions are managed differently. Clinicians sometimes attribute symptoms of abdominal pain or diarrhea to IBS without further investigation. I would like to see further study into why many patients continue to experience IBD symptoms when clinical signs suggest remission, and how to best manage these symptoms. I would also like to see how frequently IBS is inaccurately diagnosed.

Procedures And Testing
last activity 3 months ago
20    1
Proposed Idea              

Barometric Pressure & Humidity Changes upon IBD.

I have noticed significant changes to the number and viscosity of stool output based on Atmospheric Pressure (flying), Barometric Pressure (ground) and Humidity re CD and esp Colostomy ballooning. Friends w/IBS have also noticed such changes. I can submit 2 related articles via email (how?) for reference. Robert Huber, Scottsdale AZ 480.551.0520 Ostomy@AllCampusCard.com

Environment
last activity 3 months ago
1    0
Proposed Idea              

Can better tests be developed to confirm Crohn's and IBS-D diagnoses do or do not exist in patients?

Either diagnosis can take several rounds and types of testing which can take significant time and money. Additionally, when a patient has both conditions, the time to correct diagnosis and treatment is significant.

Procedures And Testing
last activity over 2 years ago
5    0

Is peppermint oil effective in prevention and treatment of pouchitis?

Peppermint oil has been used to treat GI conditions including IBS. Peppermint oil has many mechanisms of action which may make it effective in treating pouchitis. Peppermint oil is an antispasmodic, it is antibacterial, and anti inflammatory. Peppermint oil, delivered directly to the pouch, via a pH dependent delivery system may be effective in the management of pouchitis.

Alternative Therapies
last activity almost 2 years ago
1    1
Proposed Idea              

Does cold weather affect Crohn's flares?

Every winter I spend 3 months vomiting, nauseous, and achy. My Dr. has said that I have IBS in addition to small bowel Crohn's. Do others with Crohn's disease experience these symptoms in the winter?

Environment
last activity over 3 years ago
4    1
Proposed Idea              

Being adopted in the early 70's when closed adoptions were the norm, I have not gone to any lengths to find my bio couple. I have never needed to. I have wonderful parents and sibs (also adopted).

This is important because my brother has insane heart problems, I was healthy until auto-immune took over at 25...I can't help but wonder if this is genetic and will my 15 year be in the 20% risk-group? Would YOU, as a patient, try to find out more from your bio couple?

Genetics
last activity over 2 years ago
0    1

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Published Studies VIEW ALL
Prevalence and impact of inflammatory bowel disease-irritable bowel syndrome (IBD-IBS) on patient reported outcomes in CCFA Partners

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