Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

What are the long term health effects of surviving childhood ulcerative colitis?

I believe there must be something - ala 'post polio syndrome'. There are no explanations (or treatment, except for partial symptom relief) for what is happening to me. I believe there must be some connection, likely through auto-immune issues, perhaps related to the bowel surgery I had - which supposedly 'cured' me. I cannot be the only survivor experiencing these things.

Other
last activity almost 3 years ago
5    1

What is the link between ulcerative colitis and C. Difficile?

Other
last activity over 3 years ago
1    2
Proposed Idea              

What neurological complications are associated with Crohn's and Ulcerative Colitis?

By monitoring several IBD forums, I see that people frequently have questions about various neurological complications like numbness, tingling, nerve pains etc. Current research is mixed on whether or not there are neurological extra-intestinal manifestations of IBD.

Other
last activity almost 2 years ago
0    1
Proposed Idea              

What is the effect of vagus nerve stimulation in ulcerative colitis? What is the effect of an implanted VNS device on UC? What is the effect of a transcutaneous VNS device on UC?

Vagus nerve stimulation has been studied in Crohn's disease with promising results, and needs to be studied in ulcerative colitis, so that all patients with IBD may have access to this new therapy that has shown success even for patients who did not succeed on oral or IV medication. For example: https://www.newsday.com/news/health/crohns-drugs-feinstein-institute-1.20780533

Other
last activity 4 months ago
1    0
Proposed Idea              

Why do UC patients with complete colectomy continue to have autoimmune disease as well as low hemoglobin years after the surgery?

There is very little information on why autoimmune disease remains in the body despite having a complete colectomy for Ulcerative Colitis.

Other
last activity over 1 year ago
0    0
Proposed Idea              

Can reducing inflammation and increasing gut health through the removal of parasites improve ulcerative colitis?

I've personally have experienced reduced inflammation from removal of parasites. A great video series that is currently showing for free is https://autoimmunesecrets.com. The end of video 4 mentioned the following herbs for parasite removal: * mimosa pudica * neem * clove * vidanga (an Ayurvedic herb)

Other
last activity over 1 year ago
0    0
Proposed Idea              

Why does ulcerative colitis generally start distally?

Rat models of IBD usually can't get into this because of the way they induce colitis is different than how humans get UC. Why does UC generally start in the rectum and move its way upward? What causes it to often start there and then what causes it to spread?

Other
last activity about 5 years ago
2    0

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