Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Do prior authorizations required by insurance companies cause delays in patient therapies, and can these delays be correlated in an increased risk of treatment failures or increased disease activity?

In my experience with IBD, I have had several experiences where my insurance companies PA requirements have delayed my therapies weeks or months. I believe that this may lead to increased disease activity and poorer treatment outcomes or increased risk of treatment failure. If studies can effectively demonstrate this relationship, perhaps insurance companies will recognize the potential increased costs of therapy delays that result from the PA process and will strive to improve the expediency of their PA processes.

Other
last activity about 2 months ago
26    3
Proposed Idea              

Is Crohn's a genetic or environmental related disease?

Other
last activity 26 days ago
18    3
Proposed Idea              

Look for correlation between IBD & post nasal drip (PND).

Several family members with Chrones and UC also suffered from post nasal drop.

Other
last activity 2 months ago
26    4
Proposed Idea              

Is there a correlation between UC and poor circulation in feet and/or hands?

Ever since my diagnosis my feet have felt like ice blocks. It can be very painful sometimes. I am wondering if they are related.

Other
last activity 3 months ago
10    2

What percentage of people who have UC/Crohn's have also been diagnosed with Fibromyalgia? In addition, how long after having UC/Crohn's did Fibromyalgia symptoms begin?

There are many overlapping symptoms between UC/Crohn's and Fibromyalgia. For myself I developed Fibromyalgia after a severe UC flare. I believe chronic pain and fatigue go hand and hand with UC/Crohn's.

Other
last activity about 1 month ago
23    4
Proposed Idea               Best Fit for Others

Can a history of taking a lot of antibiotics result in wiping out your good gut bacteria and lead to IBD? Can probiitics or stool transplants protect from getting IBD or treat IBD?

Over prescribing of antibiotics starting in childhood has been a documented problem. If this could be contributing to the incidence of IBD, that would be important to know as a further deterrent. Also knowing what to do for patients who have no choice but to take a lot of antibiotics would be helpful. And if this is a subtype of causality, it could be specifically targeted for prevention and treatment.

Other
last activity 6 months ago
12    2

Do depressed IBD patients receive treatment for their depression?

In light of recent data from Partners showing a link between depression and a subsequent flare, im curious how many patients seek/receive treatment so as to minimize the risk of a flare. For those that don't, I wonder why and what barriers might impact access to care.

Other
last activity over 1 year ago
5    3
Proposed Idea               Best Fit for Others

Nicotine has shown to be effective for UC in some individuals, both prior- and non-smokers. What is the mechanism? Does nicotine affect the microbiome, the immune system or both?

Big Pharma will not take on the role of studying nicotine as there is no $$$ in it. Few studies with small sample sizes have been done but more research is needed.

Other
last activity 4 months ago
28    5
Proposed Idea              

How does a patient's communication with their physician impact their quality of care? What communication techniques can be implemented in order to improve the patient-physician relationship?

Many patients find it difficult to talk to their physicians, this can prevent their doctors from knowing the full picture and may increase incorrect diagnoses or delay the diagnosis. Uncontrolled disease can be harder to control and controlling it correctly from the onset is crucial in disease management.

Other
last activity 2 months ago
11    1

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Symptom Clusters in Adults with Inflammatory Bowel Disease

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