Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Lifestyle
last activity 2 months ago
10    3

Can IBD lead to the formation of depression/anxiety?

I've noticed on Twitter that there is a need of psychologists that understand how IBD can effect one's mental state of being.

Lifestyle
last activity 22 days ago
20    3

What is the effect of endurance training and or general exercise on our disease activity/ disease path?

Finding ways to manage stress is arguably a generally good health process, so wouldnt that mean doing so for chronic disease is important? but is more, more or does it potentially harm when exceeding a certain level?

Lifestyle
last activity 10 days ago
19    2

What is the role of stress and the stress response in autoimmunity?

Anyone with a disease can tell you that high stress environments make symptoms worse and relaxation techniques often help. It has also been shown, primarily in animal studies, that "stress hormones" like cortisol or changes at in epigenes have severe repercussions across the body. Can managing these help control symptoms or remission?

Lifestyle
last activity 18 days ago
55    4

Do patients have better control of their disease when they communicate with other patients (via support groups, camps, online forums, etc)?

Support groups can be a great opportunity to learn more about the disease from the experience of others. They can be a resource of both good and poor advice. I suspect the overall impact of patient peer support is positive of disease management.

Lifestyle
last activity about 1 year ago
4    3

How many IBD patients have ever been referred for counseling or offered an antidepressant by their gastroenterologist?

Depression and anxiety levels are very high in this population. Extending care to the whole person would make sense in managing disease and quality of life.

Lifestyle
last activity over 3 years ago
7    1

What is the medical, social, lifestyle impact of having a complete colectomy for those with UC?

There is not much data on the outcome of patients who've had a complete colectomy. While the surgery improved my quality of life, I am unsure of what happens as I age, etc.

Lifestyle
last activity over 3 years ago
2    1

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Published Studies VIEW ALL
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

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Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

Read Study
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease

Read Study

Active Studies VIEW ALL
Patients’ Attitudes and Preferences for Outcomes of Inflammatory Bowel Disease Therapeutics (P-POD)

Read Study

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