In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
I propose a genetics-based investigation that explores why some drugs work for some people but not others.
Many IBD patients go through years of pain and suffering because they haven't found "their drug" yet. This immense suffering could be reduced if we could determine which individuals respond to which drugs and WHY, as determined by their environment and DNA.
My sister found out she has vasculitis along with crohn's (both are inflammatory diseases). What is co-incidence and how prevalent? This would be something we could figure out with the right questions and by mining this data. Armed with this info we can be prepared for other potential problems.
There are four cousins on the paternal side of my family with IBD but no immediate family members. Would like more research on the family genes.
Thinking about future generations.
We know that Jews of European decent have a much higher chance of having an IBD. We know that the number of diagnosis of IBD has risen significantly in the last few decades. What is the one huge event that happened to the Jews of Europe just 70 years ago? The Holocaust. It could be a gene that was associated with another gene that promoted survival. It could have been a gene mutation due to living in extreme conditions. It could have been the terrible sanitation. It could have been the trauma that had been passed on to the following generations... there is much to investigate there. I come from a family of Holocaust survivors, myself. Thank you for your consideration.
It would be useful for those of us with jewish ancestry for our kids
Are there sub-types of UC? IBD has been broken into UC and Crohn's which helped with treatment. What other sub-categories are there? Could explain why certain meds work for some and not others, and shed light on question of genetics?
I have UC and so far no treatment works. My mother had the same problem until she had a colectomy. Perhaps if we understood why our disease is different than some other folks' UC, we could devise a better treatment plan.
I'd like to see a study that investigates the children of male amd female Vietnam vers exposed to agent orange. I was the ONLY member of my family with UC/Chrohns. Now me + my daughters. My dad is a
Chemicals are been proven to alter DNA. Can this altered DNA result in chronic illness in unborn children? How will it affect our future generations? My descendents?
Being adopted in the early 70's when closed adoptions were the norm, I have not gone to any lengths to find my bio couple. I have never needed to. I have wonderful parents and sibs (also adopted).
This is important because my brother has insane heart problems, I was healthy until auto-immune took over at 25...I can't help but wonder if this is genetic and will my 15 year be in the 20% risk-group? Would YOU, as a patient, try to find out more from your bio couple?