Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

The prevelance of careeganan in the diets of those who have developed Colitis / chrones. Secondly how foods with this present effects the prevelance of associated symptoms

The current research around careeganan shows that this is harmful and damages the body in the way colitis and chrons presents itself. If this information is not widely known people continue to expose themselves to harmful foods.

Diet
last activity over 1 year ago
5    2

Compare symptoms of IBD patients who consume dairy and those who avoid dairy.

“Milk fats increase the amount of taurine conjugated bile acids that promote growth and metabolic activ ity of sulphate reducing, bile acid tolerant bacterial species, which in turn stimulate pathogenic immune responses in genetically susceptible hosts” Sartor, R. B. Nat. Rev. Gastroenterol. Hepatol. 9, (2012)

Diet
last activity 29 days ago
84    4

What is the efficacy of the Specific Carbohydrate Diet on Crohn's/UC?

When I was diagnosed with Crohn's, my GI told me that diets don't work. After my GI recommended Humira, I decided to try SCD before I tried such a potent medication. The diet started working within days and, by the end of the first month, most of my symptoms were gone. Today it's been over a year and a half since I've had any significant symptoms. I would like to know if SCD works for others and, if so, what percentage of patients.

Diet
last activity over 1 year ago
6    6

We need to develop a better understanding of how nutrition as a whole affects IBD and put together a more comprehensive diet plan that includes the definite triggers.

Food has always been a contributing factor in my flares of Crohn's Disease, but the original recommendation by my doctors 20 years ago has turned out to be not only false, but the complete opposite of what I needed to be eating for my illness. I have recently started working on figuring out a better plan for my eating habits and have discovered a few things that I would like validated by research.

Diet
last activity 8 months ago
45    2
Proposed Idea              

diet for UC and diabetes

Many suffer from both, and many foods good for diabetes are problematic in UC.

Diet
last activity about 2 years ago
5    1
Proposed Idea              

A recent study linked gut problems with food additives/emulsifiers such as polysorbate 80. Would anyone be interested in limiting their diet to prohibit food additives and emulsifiers that are in processed foods to see if it affects disease progression?

Increases in IBD seem to follow economic development, which includes the availability of more processed foods. It would make sense that food is involved with these diseases of the digestive system.

Diet
last activity over 1 year ago
9    2
Proposed Idea              

We need to find an effective way to properly detect our bodies food intolerance's.

Food is a major creator to our symptoms and without proper knowledge of what is upsetting our immune systems and causing our inflammation we will continue to suffer. I've currently been researching food intolerance tests and found as all things there are good and bad opinions towards the different food intolerance methods but in my reading I discovered many believe the tests are not entirely conclusive. If we created a test to easily determine the foods that cause us any irritation we would have a much better chance of going into remission by avoiding the foods that create inflammation.

Diet
last activity about 1 year ago
41    0
Proposed Idea              

How do biologically active foods help control disease state?

Yogurt, sauerkraut, kimchee have naturally active micro flora and have restorative properties in healthy digestive tracts. Can they help maintain remission?

Diet
last activity 8 months ago
11    0
Proposed Idea              

Effects of soluble and insoluble fiber on patients with Ulcerative Colitis vs Crohn's disease.

So many patients with IBD avoid high fiber foods for fear of exacerbating their symptoms. A previous CCFA Partners study "Avoidance of Fiber is Associated with Greater Risk of Crohn's Disease Flare in a 6 Month Period" addressed this, but unfortunately did not differentiate between soluble and insoluble fiber. There is not enough research on IBD and diet in general, but I believe it is so important, because we all have to eat. A high fiber diet is considered to be important for many aspects of good health in the general public. But insoluble fiber specifically is a part of the diet that is widely considered by IBD patients to be taboo. This thought is based on our own personal conclusions rather than on good, solid research. I want to know if and when it's safe to eat fruits and vegetables, and how to prepare them.

Diet
last activity 6 months ago
6    0

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Published Studies VIEW ALL
Avoidance of Fiber is Associated with Greater Risk of Crohn's Disease Flare in a 6 Month Period

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Prevalence of a Gluten-free Diet and Improvement of Clinical Symptoms in Patients with Inflammatory Bowel Diseases

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Dietary Patterns and Self-Reported Associations of Diet with Symptoms of Inflammatory Bowel Disease.

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Active Studies VIEW ALL
Food And Crohn’s Exacerbation Study (FACES)

Read Study

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