In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
The numbers of IBD patients using medicinal marijuana is increasing at a rapid pace and many patients who use it feel that it improves their quality of life. We need research-based evidence to determine the underlying connection. Does it improve symptoms that make patients feel better (pain, loss of appetite, decreased stress and increased sleep), or does it actually have an anti-inflammatory effect on the gut?
What is the comparative safety and efficacy of natural supplements (vitamin D, fish oil, turmeric) commonly used in IBD versus prescription medications?
Many of us try natural supplements instead of or in addition to prescription medications in the management of IBD. Are natural supplement products more safe or effective when compared to prescription medications? Is combining natural supplements with prescription treatments more effective?
Patients are experimenting with fecal transplants without the benefits of a scientific study determining effectiveness and safety. Can we pump more funds into understanding the role of microbes on IBD, and whether there is a safer way to introduce beneficial microbes into the gut?
The use of lglutamine in achieving remission and those who have used this as either the main factor or as a contributing factor
I believe this strongly helped me alongside a low fibre diet, avoiding all foods that my body is intolerant to (following food intolerance test) and using lglutamine for internal repair.
Happiness research is finding successful impact with many types of disorders. How might it help with UC sufferers?
The use of a specialized technique in Physical therapy developed by Clear Passages to alleviate intestinal obstructions to prevent surgery and mediate obstruction symptoms.
I have used this therapy to alleviate symptoms of intestinal obstruction and alleviate symptoms associated with blockages. It has prevented me from having surgery twice now. I have had two surgeries in the past and the adhesions plus active crohn's predispose me to intestinal blockage and obstruction.
It's described as a safe approach to healing auto-immune illnesses.
Is saccharomyces boulardii a possible alternative for many of the medications currently used for UC and Crohns?
I think this research is very important given the cost of medication currently prescribed for these illnesses not to mention the many side effects these drugs can have on a person's overall health.
Peppermint oil has been used to treat GI conditions including IBS. Peppermint oil has many mechanisms of action which may make it effective in treating pouchitis. Peppermint oil is an antispasmodic, it is antibacterial, and anti inflammatory. Peppermint oil, delivered directly to the pouch, via a pH dependent delivery system may be effective in the management of pouchitis.
What is the importance of Vitamin A supplementation (and at what level) on IBD remission and healing after a flair. Also, its use to offset the retardation of healing with prednisone use.
Could a valuable addition to a treatment regiment and possibly even a preventative.