Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Female menstrual cycle and the worsening of symptoms with each cycle. Is this hormone related and would contraception ease symptoms?

My monthly cycle can often catapult me back into a full on flare and at the least i see a deterioration in my symptoms at this time of my cycle

Women's Health
last activity 12 months ago
30    3
Proposed Idea              

Why some women with Crohn's Disease achieve remission, during the second and third trimester of pregnancy, then flare months after giving birth.

Because, it happened to me with both of my.pregnancies. During my first trimester, I had to be hospitalized with partial obstruction. After that, I was healthier than I'd been in years, until a few months after giving birth.

Women's Health
last activity over 1 year ago
1    1
Proposed Idea              

What is being done for surgical research to improve the lives of patients with multiple organ removal due to IBD/Ostomy who experience pelvic floor total collapse, including sexual function?

So far, reconstructive surgery to assist aging or disease complication organ losses causing serious pelvic floor collapse, sexual function seems IGNORED. When a woman has breast cancer, she is accepted and provided a method of reconstruction surgery to feel WHOLE and this assists both body and mind recovery in surviving her cancer. When an IBD patient spans losses and complications over time to end up with a non-immediate loss of feeling WHOLE, there's little to no information or medical access to having the RIGHT to be rebuilt and developing methods to surgically repair to reasonable expectations the pelvic floor, core and sexual health of someone who is missing large intestine, uterus, cervix, small gut and other organs from their illness trajectory to survive. Many of us are left at young age without our sexual function. We develop urological, bone, muscle/tissue wasting and other serious impairments and are ignored or told to "live with it", as the only answer. Where is the surgical research to develop and normalize the many of us suffering without answer?

Women's Health
last activity about 2 months ago
1    0
Proposed Idea              

Is there a relationship between maternal, fetal, or early childhood infection and the development of IBD later in life?

My mother contracted shingles when she was pregnant with me. I believe my Crohn's could potentially be related to prenatal immune stress caused by my mother's infection. Mothers and fetuses share hormones, immune cells and other factors that could impact the development of the immune system in the fetus. A potential mechanism for this could involve epigenetic changes in the expression of genes related to immunity.

Women's Health
last activity about 2 years ago
9    0
Proposed Idea              

Do hormones affect IBD flares?

Many women seem to experience more GI symptoms during their period. Perhaps the onset of IBD is linked to a hormonal imbalance which manifests by attacking the gut.

Women's Health
last activity about 2 years ago
7    0
Proposed Idea              

Is there a correlation between IBD-related amenorrhea & the development of Polycystic Ovarian Syndrome (PCOS) in IBD patients? Is the diagnosis rate of PCOS higher in IBD patients vs. non IBD groups?

Women's Health
last activity 12 months ago
1    0
Proposed Idea              

Is there a link between liver tumors like Focal Nodular Hyperplasia (FNH) and Crohn's disease, in women?

Women's Health
last activity about 1 year ago
0    0
Proposed Idea              

Is IBD/flaring commonly associated with gynecologic manifestations, such as lichen sclerosus or localized inflammation at the labia/vaginal vault?

There's a lot of information available about some specific extra-intestinal manifestations, but not in this area. More than 50% of the IBD Partners participants are female, and studies already document a correlation between hormones and flaring.

Women's Health
last activity about 1 year ago
0    0
Proposed Idea              

What link is there between nutritional deficiencies in pregnant women with IBD and their children's health: dental cavities at young age, ADHD, etc?

Women's Health
last activity about 3 years ago
1    0

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