Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Studied              

Does gluten have an impact on symptoms and progression of IBD?

I have read a lot of anecdotal stories and watched many documentaries about how completely removing gluten from the diet has improved, and sometimes reversed, many health ailments such as high blood pressure, high cholesterol, diabetes, fibromyalgia, MS, IBD, and more. I also read the results of the previous CCFA partners survey that indicated improvement of symptoms by patients following a gluten free lifestyle. I would love to see a more in-depth, controlled study of this topic. Most doctors I have visited have never recommended a restrictive diet to improve my symptoms. The only person to do this is my current nutritionist who is able to control her UC by eliminating gluten. Just a few of my resources have been the book Wheat Belly by Dr. William Davis and the documentaries Forks Over Knives and Fed Up.

Diet
last activity 2 months ago
6    3
Studied              

Research the validity of VSL#3 probiotic in controlling flare ups or as a factor in remission.

I tried this as a last resort 3years ago during a very serious flare up of UC and it not only put me in remission but I have not felt this healthy in over 9 years!! Have been thru many stressful situations since being in remission and absolutely no symptoms of a flare up!!!!

Diet
last activity 2 months ago
99    7
Studied              

Can we predict future IBD diagnosis based on c-section vs vaginal delivery of babies?

As a UC patient, I would do anything to try to prevent my kids from suffering from IBD as I have. I wish I could have known if the very start of their lives might have some impact on their possible IBD futures.

Women's Health
last activity about 2 years ago
4    1
Studied              

Can your pet's microbiome effect your own gut microbiota?

Many people have pets, and although they reduce stress, could they also affect your gut microbiota? What's the difference between non-pet owners and pet-owners microbiota, if any?

Other
last activity about 2 years ago
4    1
Studied              

The relationship of Crohn's Disease, oral birth control, and blood clotting disorders.

Blood clots on birth control are on the rise and Crohnies are especially vulnerable.

Women's Health
last activity about 1 year ago
0    1

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Published Studies VIEW ALL
Social Media Use and Preferences in Patients With Inflammatory Bowel Disease

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Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network - Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network

Read Study
Paternal Disease Activity Is Associated With Difficulty in Conception Among Men With Inflammatory Bowel Diseases

Read Study

Active Studies VIEW ALL
The Effects of Antidepressant Medication and Social Support on Disease Progression in IBD Patients

Read Study
Symptom Clusters in Adults with Inflammatory Bowel Disease

Read Study
Psychological Factors Associated with Adherence to Oral Treatment in IBD

Read Study

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