Research Ideas  

×
Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

Show More

You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Does medicinal marijuana have an anti-inflammatory response on IBD patients?

The numbers of IBD patients using medicinal marijuana is increasing at a rapid pace and many patients who use it feel that it improves their quality of life. We need research-based evidence to determine the underlying connection. Does it improve symptoms that make patients feel better (pain, loss of appetite, decreased stress and increased sleep), or does it actually have an anti-inflammatory effect on the gut?

Alternative Therapies
last activity 5 days ago
106    19
Proposed Idea              

For those patients who have failed anti-TNF alpha therapy, what is the next best step? Is Entyvio, Stelara, or Xeljanz more effective?

Many patients, myself included, have either not responded to anti-TNF therapies or have lost response. It would be helpful for both doctors and patients to know what the next best step is.

Medications
last activity about 2 months ago
21    5
Proposed Idea              

Does IBD impact the absorption and pharmacokinetics or oral medications?

IBD can have a significant impact on motility and gut absorption. Most medication pharmacokinetic studies are completed using healthy volunteers. If there is a significant impact on oral medication absorption/pharmacokinetics with active IBD, this may have an important role in determining a safe and effective dose.

Medications
last activity about 2 months ago
35    6
Proposed Idea              

Do prior authorizations required by insurance companies cause delays in patient therapies, and can these delays be correlated in an increased risk of treatment failures or increased disease activity?

In my experience with IBD, I have had several experiences where my insurance companies PA requirements have delayed my therapies weeks or months. I believe that this may lead to increased disease activity and poorer treatment outcomes or increased risk of treatment failure. If studies can effectively demonstrate this relationship, perhaps insurance companies will recognize the potential increased costs of therapy delays that result from the PA process and will strive to improve the expediency of their PA processes.

Other
last activity about 2 months ago
26    3
Proposed Idea              

How many people who have had a resection suffer with ongoing diarrhea? What medications/OTC drugs are most effective with this problem?

This is important for quality of life... and perhaps surgeons will be more conservative in cutting if there is a chance to save important regions of the intestinal track!

Procedures And Testing
last activity 19 days ago
32    11

What is the long term effectiveness of bowel resection as a treatment? What % of people are in remission at intervals of decades following surgery? What factors lead to longer periods of remission?

I have the experience of a surgery in about 1972 and continue to be in remission. Knowing more about why some surgery is sucessful like this seems like it would help inform treatment choices.

Procedures And Testing
last activity about 2 months ago
11    6
Proposed Idea              

I would like to know the incidence of relapses of disease (Crohns, UC, other IBD) immediately following a colonoscopy, when the patient has been in remission prior to the test.

I was in remission with my Crohns for years and had an colonoscopy and have had active disease ever since, for over 3 years.

Procedures And Testing
last activity 2 months ago
18    4
Proposed Idea              

Is Crohn's a genetic or environmental related disease?

Other
last activity 26 days ago
18    3
Proposed Idea              

Look for correlation between IBD & post nasal drip (PND).

Several family members with Chrones and UC also suffered from post nasal drop.

Other
last activity 2 months ago
26    4

Propose Research Idea


Published Studies VIEW ALL
Social Media Use and Preferences in Patients With Inflammatory Bowel Disease

Read Study
Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network - Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network

Read Study
Paternal Disease Activity Is Associated With Difficulty in Conception Among Men With Inflammatory Bowel Diseases

Read Study

Active Studies VIEW ALL
The Effects of Antidepressant Medication and Social Support on Disease Progression in IBD Patients

Read Study
Symptom Clusters in Adults with Inflammatory Bowel Disease

Read Study
Psychological Factors Associated with Adherence to Oral Treatment in IBD

Read Study

Want to Join the Network?

Do you have Crohn's disease or ulcerative colitis? Join other patients and the IBD research community to help us all learn more about IBD together.

Join

Already a Member? Sign in.
Are you a researcher? Click here.
Under age 18? Join IBD Partners Kids & Teens.