Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Lifestyle
last activity 2 months ago
10    3

What percentage of people who have UC/Crohn's have also been diagnosed with Fibromyalgia? In addition, how long after having UC/Crohn's did Fibromyalgia symptoms begin?

There are many overlapping symptoms between UC/Crohn's and Fibromyalgia. For myself I developed Fibromyalgia after a severe UC flare. I believe chronic pain and fatigue go hand and hand with UC/Crohn's.

Other
last activity 7 months ago
25    5
Proposed Idea              

Researching IBD symptom of fatigue and low energy: normal diet arm vs. supplement arm (Vitamins D3 and B12, and Fish Oil.)

There are many health benefits of being on a plant based diet. However, veganism can be associated with low levels of vitamins D3 and B12. Such as study would determine comprehensive care for patients considering their energy levels, diet, and supplement intake.

Diet
last activity 16 days ago
1    0
Proposed Idea              

Are probiotics effective in people with total Colectomy and Short Gut Syndrome? And what type of probiotic is best for this condition or are they worth it at all.

After a long history of Surgery including Sepsis an unsettled gut means Nausea which means lack of appetite,which leads to fatigue etc...

Diet
last activity about 1 year ago
1    0

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Published Studies VIEW ALL
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

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Symptom Clusters in Adults with Inflammatory Bowel Disease

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Prevalence and impact of inflammatory bowel disease-irritable bowel syndrome (IBD-IBS) on patient reported outcomes in CCFA Partners

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Active Studies VIEW ALL
Your search did not match any active studies.

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