In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
What is the effect of endurance training and or general exercise on our disease activity/ disease path?
Finding ways to manage stress is arguably a generally good health process, so wouldnt that mean doing so for chronic disease is important? but is more, more or does it potentially harm when exceeding a certain level?
How does disease activity and symptoms compare between patients with a vegan/vegetarian versus those who consume meat.
There are many various diets claiming health benefits but it's often difficult to compare complex diets. Vegan and vegetarian diets are simple dietary restrictions that are somewhat common and can be assessed more easily.
What are some modifiable lifestyle habits that have the most significant effects on IBD disease activity?
It would be great if we could identify key modifiable habits that effect disease activity (positive and negative) in order to understand ways to minimize disease activity? Some measures I would propose studying include: amount of sleep, alcohol use, smoking, hours worked per day or days per year, exercise, weight management, frequency of social/family interaction.
Many people seem to have less disease activity when they switch to a diet that restricts sugar, wheat or grains. Could there be a connection between high insulin levels (with or without diabetes)?
The physical "stress" of getting too little sleep (less than 6 or 7 hours per night) exacerbates my symptoms. This is a phenomenon I have observed over the last 30+ years. Unfortunately, I also have 3 sleep disorders. Therefore, despite the medications I take, I can't tell whether I've had good quality sleep even when I sleep 8 or more hours. Do patients who don't respond well to Crohn's treatments have undiagnosed sleep disorders?
How can the sCDAI be accurately assessed for Crohn's patients who experience constipation and not frequent and/or loose bowel movements?
Diarrhoea is not a symptom in all Crohn's patients. This causes two primary issues. The first issue is the length of time to be tested and diagnosed as constipation is not often seen as a symptom. Second, most disease activity surveys/charts/measurements become inaccurate for those who do not experience loose, watery stools. This only adds to the frustration and alienation of the patient from society and now their own IBD community.
Do longitudinal evaluation of Vit D3 findings relate with disease activity, progress, treatment response, or remission?
Crohn's patients appear to have consistently low Vit D3, and disease prevalence is higher in northern latitudes with less sun and lower natural Vit D3 exposure and levels. Ultimately conduct longitudinal study to evaluate benefit aggressive management of Vit D3 to assist as adjunct in therapy, and to consider benefit of supplementation in at possible risk populations (1st degree family at high latitudes).
Is the use of probiotics significantly beneficial for IBD patients? If so, what types are most beneficial for mucosal healing and prevention of future disease activity?
Current treatments for IBD focus heavily on the body's immune response and "warding off" the disease. It is important to do what we can to heal the intestine after damage has occurred and prevent damage to the best of our ability.
Can GI tract be mapped to identify locations of specific nutrient absorption & areas of disease activity/damage be studied to determine likely deficiencies & appropriate supplements for individuals?
This could allow patients and providers a better understanding of what their specific disease damage and activity could be affecting and allow targeted vitamin/mineral nutritional supplementation to be prescribed, thus preventing or more effectively treating systemic complications of IBD and associated nutritional deficiencies affects on the body.
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases