Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

What diet (i.e. plant based, whole food/vegan) is most likely to help IBD patients achieve and retain remission?

Many medications and treatments for IBD are costly and long-term commitments. Dietary and lifestyle changes are a crucial first line of defense and often a more financially sustainable intervention. Patients and medical practitioners need more information about health-supportive diets.

Diet
last activity 26 days ago
45    15

Are there any IBD patients who are on the Paleo or Specific Carbohydrate Diet? Has this diet positively affected your symptoms?

While all IBD sufferers have unique food triggers, I was wondering if anyone has had success by eliminating certain foods.

Diet
last activity about 2 months ago
35    12

What kinds of diets are recommended for Crohn's patients?

Diet
last activity about 2 months ago
34    8

What research has been done on using CBD extracted from marijuana or on marijuana in the treatment of various IBD (Crohn's, Colitis, etc)? Are there positive correlations to it treating the disease?

Gets users talking about potential alternative treatments, as well as treatments that may have far less significant side effects when compared to biologics and steroids.

Alternative Therapies
last activity about 2 months ago
58    8

What is the long term effectiveness of bowel resection as a treatment? What % of people are in remission at intervals of decades following surgery? What factors lead to longer periods of remission?

I have the experience of a surgery in about 1972 and continue to be in remission. Knowing more about why some surgery is sucessful like this seems like it would help inform treatment choices.

Procedures And Testing
last activity about 2 months ago
11    6

What is the effectiveness of CBDs in treating a IBD flair or in preventing one?

CBDs seen to be a readily available and benign treatment for inflammation of many types. They may prove to be a treatment much easier on the body than the current course of drugs.

Medications
last activity about 2 months ago
14    3

Can IBD lead to the formation of depression/anxiety?

I've noticed on Twitter that there is a need of psychologists that understand how IBD can effect one's mental state of being.

Lifestyle
last activity 8 months ago
15    3

What is the comparative safety and efficacy of natural supplements (vitamin D, fish oil, turmeric) commonly used in IBD versus prescription medications?

Many of us try natural supplements instead of or in addition to prescription medications in the management of IBD. Are natural supplement products more safe or effective when compared to prescription medications? Is combining natural supplements with prescription treatments more effective?

Alternative Therapies
last activity 2 months ago
24    4

What percentage of people who have UC/Crohn's have also been diagnosed with Fibromyalgia? In addition, how long after having UC/Crohn's did Fibromyalgia symptoms begin?

There are many overlapping symptoms between UC/Crohn's and Fibromyalgia. For myself I developed Fibromyalgia after a severe UC flare. I believe chronic pain and fatigue go hand and hand with UC/Crohn's.

Other
last activity about 1 month ago
23    4

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Published Studies VIEW ALL
Social Media Use and Preferences in Patients With Inflammatory Bowel Disease

Read Study
Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network - Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network

Read Study
Paternal Disease Activity Is Associated With Difficulty in Conception Among Men With Inflammatory Bowel Diseases

Read Study

Active Studies VIEW ALL
The Effects of Antidepressant Medication and Social Support on Disease Progression in IBD Patients

Read Study
Symptom Clusters in Adults with Inflammatory Bowel Disease

Read Study
Psychological Factors Associated with Adherence to Oral Treatment in IBD

Read Study

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