Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

What is the link between gum disease and colitis?

Genetics
last activity 5 months ago
0    4

I propose that the link between Crohn's/UC and other auto-immune diseases be researched more in depth.

Environment
last activity about 1 month ago
14    3

What are some modifiable lifestyle habits that have the most significant effects on IBD disease activity?

It would be great if we could identify key modifiable habits that effect disease activity (positive and negative) in order to understand ways to minimize disease activity? Some measures I would propose studying include: amount of sleep, alcohol use, smoking, hours worked per day or days per year, exercise, weight management, frequency of social/family interaction.

Lifestyle
last activity about 1 month ago
8    2

I propose researching medical cannabis for both symptom management and clinical remission.

Several studies have already been done in Israel at the Meir Institute with very promising results. A placebo controlled study with medication-resistant patients showed a remission rate approximately the same as leading medications. (~50% clinical remission.) Creating safer medications that are also less expensive than current medications should be a high priority, particularly given the promising results, both clinical and anecdotal, and the rising approval of medical cannabis across the US.

Alternative Therapies
last activity 5 months ago
39    1
Proposed Idea              

What effects, if any, do sleep disorders have on Crohn's disease activity levels?

The physical "stress" of getting too little sleep (less than 6 or 7 hours per night) exacerbates my symptoms. This is a phenomenon I have observed over the last 30+ years. Unfortunately, I also have 3 sleep disorders. Therefore, despite the medications I take, I can't tell whether I've had good quality sleep even when I sleep 8 or more hours. Do patients who don't respond well to Crohn's treatments have undiagnosed sleep disorders?

Other
last activity 27 days ago
1    1

Did the Holocaust have to do with the rise in IBD?

We know that Jews of European decent have a much higher chance of having an IBD. We know that the number of diagnosis of IBD has risen significantly in the last few decades. What is the one huge event that happened to the Jews of Europe just 70 years ago? The Holocaust. It could be a gene that was associated with another gene that promoted survival. It could have been a gene mutation due to living in extreme conditions. It could have been the terrible sanitation. It could have been the trauma that had been passed on to the following generations... there is much to investigate there. I come from a family of Holocaust survivors, myself. Thank you for your consideration.

Genetics
last activity over 1 year ago
1    2
Proposed Idea              

How do seasonal allergies correlate with UC or CD flares and management?

I have begun to notice a recent correlation of my personal symptoms with seasonal allergies, and I am wondering if others have experienced this as well, or if antihistamines play any roll in this correlation.

Environment
last activity 11 months ago
12    1
Proposed Idea              

A recent study linked gut problems with food additives/emulsifiers such as polysorbate 80. Would anyone be interested in limiting their diet to prohibit food additives and emulsifiers that are in processed foods to see if it affects disease progression?

Increases in IBD seem to follow economic development, which includes the availability of more processed foods. It would make sense that food is involved with these diseases of the digestive system.

Diet
last activity about 1 year ago
9    2

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Published Studies VIEW ALL
High Patient Activation Is Associated With Remission in Patients With Inflammatory Bowel Disease

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Social Media Use and Preferences in Patients With Inflammatory Bowel Disease

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Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network - Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network

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Active Studies VIEW ALL
The Effects of Antidepressant Medication and Social Support on Disease Progression in IBD Patients

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Symptom Clusters in Adults with Inflammatory Bowel Disease

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Psychological Factors Associated with Adherence to Oral Treatment in IBD

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