In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
I took Pentasa for over 10 years and when my creatinine levels got high I saw a nephrologist who said this damage was caused by drugs like Pentasa. My GI said this is an area of disagreement. I would like this researched so the 5-ASA drugs can be discontinued as a long term IBD treatment.
It can cause many problems that are helped by current Crohn's medications.
Obviously medication is prescribed a certain way for a reason. However, I am not alone when it comes to the need to reduce my medicine due to expense. I'm curious if, for example, it is better to take 2 pills of 4 prescribed/day or 4/day every other day. I just want to know the safest bet.
A great deal of research has been done that showed that dog visits to hospitals boosted mood and reduced pain, anxiety and depression. Does having a dog reduce pain and depression for Crohn's or IBD?
I have had reactions to the biologics and I am concerned about the risk of cancer, as it runs in my family. I have also had reactions to pill medications so my treatment options are limited.
Prevalence and impact of inflammatory bowel disease-irritable bowel syndrome (IBD-IBS) on patient reported outcomes in CCFA Partners
Patient-Reported Outcomes and Quality of Life in Patients with Ileal Pouch-Anal Anastomosis (IPAA)