In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
New research ive seen online indicates MAP could play a role in the cause of crohns. New research to detect and kill this bacteria may lead to a cure, better understanding, and better treatment for patients who are suffering from IBD.
Nicotine has shown to be effective for UC in some individuals, both prior- and non-smokers. What is the mechanism? Does nicotine affect the microbiome, the immune system or both?
Big Pharma will not take on the role of studying nicotine as there is no $$$ in it. Few studies with small sample sizes have been done but more research is needed.
Mouth problems have been associated with IBD, however, these problems have historically been explained as a symptom of IBD. I would like the hypothesis tested that mouth problems (e.g. possibly due to an altered oral microbiome) may be a trigger of inflammation, and not a symptom (i.e. good oral hygiene is associated with less gut inflammation). Background information: It has been shown that the oral microbiome in IBD patients differs compared to healthy controls (https://www.ncbi.nlm.nih.gov/pubmed/21987382). Anecdotal evidence: I notice a worsening of symptoms when I do not regularly floss. I'm an epidemiologist, so I know there is little value in anecdotal evidence, but still wanted to share my thinking!
How can we help couples make more informed decisions regarding medication usage during pregnancy and nursing? Most biologics have not even had animal studies conducted.
Making healthy decisions about the health of one's unborn child is one of the most important responsibilities of a parent. Any help the medical community can give would help with better outcomes for babies and mothers in addition to easing pre-pregnancy anxieties.
What is the effect of endurance training and or general exercise on our disease activity/ disease path?
Finding ways to manage stress is arguably a generally good health process, so wouldnt that mean doing so for chronic disease is important? but is more, more or does it potentially harm when exceeding a certain level?
Patients are experimenting with fecal transplants without the benefits of a scientific study determining effectiveness and safety. Can we pump more funds into understanding the role of microbes on IBD, and whether there is a safer way to introduce beneficial microbes into the gut?
Is the gut flora of people with IBD similar to people with depression and/or anxiety? I propose exploring a connection between the microbiota associated with IBD and mental health disorders.
I believe this question to be important because disruption of the gut flora is implicated in autoimmune diseases, obesity and mental illness and finding connections could broaden the medical community's approach in treating all of the above. I also think the designation of these illnesses as primarily "western illnesses" is interesting, particularly given how our food system functions (antibiotic use in meat production, use of bleach on salad greens, etc).
How many IBD patients take antidepressants to help manage their health? Does this help to fight off remission by controlling depression?
Anything that prevents remission is important!
What portion of IBD patients also have IBS? How can IBS be accurately diagnosed in patients with IBD? How can patients/clinicians identify symptoms due to IBD versus IBS, and what treatments are best?
Irratable bowel syndrome (IBS) has many of the same symptoms as inflammatory bowel disease (IBD). Many patients with IBD may also experience IBS making it difficult to know how to treat given that the two conditions are managed differently. Clinicians sometimes attribute symptoms of abdominal pain or diarrhea to IBS without further investigation. I would like to see further study into why many patients continue to experience IBD symptoms when clinical signs suggest remission, and how to best manage these symptoms. I would also like to see how frequently IBS is inaccurately diagnosed.
My sister found out she has vasculitis along with crohn's (both are inflammatory diseases). What is co-incidence and how prevalent? This would be something we could figure out with the right questions and by mining this data. Armed with this info we can be prepared for other potential problems.
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease