Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

I am interested to know whether inflammation in the colon contributes to anxiety symptoms, especially during peristalsis

For many UCers, stress is a big factor of their UC (I have periods where I feel anxious for no apparent reason). I am wondering if the link could be inflammation in the colon triggering the anxious response

Mental Health
last activity about 1 year ago
1    0
Proposed Idea              

Does cryotherapy have an anti-inflammatory response on IBD patients?

Athletes who regulary compete at high levels often use ice baths to help in recovery. New systems have been created to replicate the benefits of ice baths. These systems, such as Cryo-chambers can achieve similar benefits to ice baths. Many professional athletes are using this system to recover faster for game day. I had the opportunity to try a whole body cryo treatment (2 minutes long) and within a day I noticed a decrease in IBD symptoms. I feel that the anti-inflammatory effect of cryo treatments could be a useful strategy in helping to minimize symptoms of IBD.

Alternative Therapies
last activity 7 months ago
0    0
Proposed Idea              

Do hormones affect IBD flares?

Many women seem to experience more GI symptoms during their period. Perhaps the onset of IBD is linked to a hormonal imbalance which manifests by attacking the gut.

Women's Health
last activity over 2 years ago
7    0
Proposed Idea              

What are the treatment outcomes of using Accutane for treatment of resistant acne in adults with Crohn's Disease? Does the dosage and length of treatment time using Accutane impact Crohn's related symptoms?

There is conflicting evidence with small sample sizes and limited studies on the association between Accutane and Crohn's disease. Dermatologists and patients need to know best practice procedures and potential implications, and outcomes before using acne medications.

Medications
last activity about 2 years ago
9    0
Diet
last activity 12 months ago
0    0
Proposed Idea              

Is there a correlation between IBD-related amenorrhea & the development of Polycystic Ovarian Syndrome (PCOS) in IBD patients? Is the diagnosis rate of PCOS higher in IBD patients vs. non IBD groups?

Women's Health
last activity over 1 year ago
1    0
Proposed Idea              

How does a nutritional cleanse, like isagenix, impact long-term crohns disease and symptoms?

I have been using isagenix on and off for the past year. It has really help improve both my symptoms, pain, and energy levels since being diagnosed with crohns about 6 years ago.

Diet
last activity over 3 years ago
2    0
Proposed Idea              

How do patients rank their severity of symptoms and quality of life, in comparison to the indices used in IBD studies to evaluate effective outcomes?

Studies commonly utilize scales such as CDAI to evaluate disease severity. For these scales to hold value in determining treatment outcomes, it is essential to evaluate whether the scales align with the perceptions of symptoms reported by patients.

Other
last activity over 2 years ago
5    0
Proposed Idea              

Why scientific research is not focusing on the Liver? A clean Liver produces a healthy body.

In 1960 I had very intensive pain on my abdomen. After all attempts by doctors to stop the pain failed the next solution was to remove the inflamed portion of the intestines. My mom wanted the opinion of a doctor in Milan, Italy. We traveled there and the doctor touched my pain area and I fainted. He had a prescription ready when I woke up while my mom was attending me. He prescribed 3 shots of the following medications: Methionine, Vitamin B-12, and Vitamin K. A two week treatment and I woke up following the treatment brand new. No pain, no acid stomach or reflux, no allergies toward foods, cristal clear brain and eyes, and lasted for 3 years where I ate everything. Looking back a clean Liver controlled Crohn’s disease. I almost died from the treatment of Metacatpurine an immune lowering Crohn’s pills. If I wouldn’t have stop taking them two months before my stomach flu, that the entire office had, the doctor at the emergency room said if the pills were in my system he couldn’t save me. Why lower the immune system when a clean liver can control the disease. I am controlling Crohn’s and ulcerative colitis with Liver supplements and diet. The Liver loves vegetables specifically raw vegetables. I can stop inflammation pain within one hour with raw vegetables smoothies every time with no variation. I do consume protein with vegetables in smaller quantities. The main source of impact for the disease is flour products such as bread, sugars, and carbohydrates since they convert to sugars. I had 50 years of acid stomach and reflux where no doctor was able to stop it. But as I changed my diet and removed bread and carbohydrates from my diet the symptoms completely stopped. That to me was much better than Crohn’s problems since the acidity produced ulcers in my stomach and esophagus where I couldn’t swallow any more. I hope this information will create a new view in treating Crohn’s disease and many other diseases since the Liver seem to control our health. Thank you for consideration.

Research Methods
last activity over 1 year ago
0    0
Proposed Idea              

What is the role of antibiotics in triggering a flare up or induce/maintain remission (with particular focus on Rifaximin) ?

There have been a few researches showing that antibiotics might have a role in flares/remission. I have been diagnosed with UC 20 years ago and I have noticed that many times when I take antibiotics for other non IBD related issue my UC wakes up. I have also noticed that Rifaximin helps when I am experiencing mild symptoms. Could it be that some antibiotics kill the good bacteria therefore triggering a flare up and other have a positive effect killing the bad bacteria therefore supporting remission?

Microbiome
last activity over 1 year ago
0    0

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Published Studies VIEW ALL
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

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Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network - Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network

Read Study
Symptom Clusters in Adults with Inflammatory Bowel Disease

Read Study

Active Studies VIEW ALL
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