Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Consequences of J-Pouch Surgery on Pouch Microbiome

Given the increased interest and implications for altered gut microbiome in IBD, I think it is important that investigations into how surgical treatments affect the new digestive structures. Looking comparatively at pre-surgery microbiomes and post-surgery microbiomes may give insights into how to most effectively treat UC, should the mechanisms that cause the disease still act in the absence of a colon.

Procedures And Testing
last activity over 2 years ago
3    2

Research shows less colitis in mice eating high cellulose than mice eating low cellulose & Crohn’s symptoms stopped in 4 wks in 4 people eating a high cellulose (bran) cereal. Cellulose feeds good bacteria—does eating bran cereal help fix the microbiome?

Many people with Crohn's disease want to know what food to eat. There seems to be a lot of research about drugs and dietary supplements, but not much research to help people know what food to eat.

Diet
last activity over 4 years ago
14    2

Are there sub-types of UC? IBD has been broken into UC and Crohn's which helped with treatment. What other sub-categories are there? Could explain why certain meds work for some and not others, and shed light on question of genetics?

I have UC and so far no treatment works. My mother had the same problem until she had a colectomy. Perhaps if we understood why our disease is different than some other folks' UC, we could devise a better treatment plan.

Genetics
last activity over 1 year ago
18    1

How many IBD patients have ever been referred for counseling or offered an antidepressant by their gastroenterologist?

Depression and anxiety levels are very high in this population. Extending care to the whole person would make sense in managing disease and quality of life.

Lifestyle
last activity about 4 years ago
7    1

Long-term outlooks for patients who have had J-pouch surgery and reconnection

J-pouch surgery, as a final effort to mitigate UC symptoms, can be life-changing. However, it seems that little information is available describing the long-term outlook for patients who have had the procedure. With an increase in IBD diagnoses in children, it is safe to assume that rates of J-pouch surgeries in children will also increase. A longitudinal study following J-pouch patients for several years following their surgeries should be conducted to highlight any common complications or symptoms that appear over the course of time. This research would be especially significant for better advising younger patients and their caregivers.

Procedures And Testing
last activity about 4 years ago
3    1

Please resesrch chronic pouchitis in patients who have had total colectomies w/placement of ileal/ anal pouch.

Many of us pouchitis patients are still suffering post-op and had no idea this could happen to us.I have been suffering for 15 yrs.Thank You for your effort.Maybe a Dr. could speak on this also

Procedures And Testing
last activity about 4 years ago
4    1

How impactful is the financial burden of medication cost on medication adherence? What are the long term repercussions for patients who opt out of medication therapies?

The patient cost of commonly prescribed medications for the treatment of IBD often falls into Tier VI drug categories with higher out of pocket costs than standard co-pays. This expense may influence patients to opt out of proven therapies due to the nature of the expense leaving them vulnerable to increased flare rates and more frequent hospitalizations that ultimately cost more. Improving medication adherence on the front end could lead to an overall cost savings for patients and insurers alike.

Medications
last activity over 4 years ago
3    1

What are the pros and cons of the different biologic medication options and how do they compare to one another? Is there a specific order that these should be tried?

With an increasing number of patients taking biologic medications (remicade, humira, entyvio), we need to know how these compare both in remission rates and side effects

Medications
last activity almost 5 years ago
2    1

What is the medical, social, lifestyle impact of having a complete colectomy for those with UC?

There is not much data on the outcome of patients who've had a complete colectomy. While the surgery improved my quality of life, I am unsure of what happens as I age, etc.

Lifestyle
last activity about 4 years ago
2    1

We should research how pregnancy causes/impacts UC and Crohn's.

to help women make more informed decisions regarding pregnancy

Women's Health
last activity over 3 years ago
3    1

Propose Research Idea


Published Studies VIEW ALL
Trends and Characteristics of Clinical Trials Participation for Inflammatory Bowel Disease in the United States: A Report From IBD Partners

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Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

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Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

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Active Studies VIEW ALL
The Effects of Antidepressant Medication and Social Support on Disease Progression in IBD Patients

Read Study
Symptom Clusters in Adults with Inflammatory Bowel Disease

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Psychological Factors Associated with Adherence to Oral Treatment in IBD

Read Study

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