In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
I propose a study of a non-GMO diet for Crohn's and UC patients. With an emphasis on understanding the rising rate of diagnosis in the US and Asia regions versus the EU region which has banned GMO.
Provide data which could should a causal effect in the increase of diagnosis in specific regions which allow GMO products.
Does the use of (prebiotic) inulin and/or fructooligosacharides help maintain or increase the gut barrier? Does it reduce IBD relapse? Is it safe? What is the optimal dosage? Any contraindictions?
If the use of prebiotics reduces the onset of UC (or chrohn's) or decreases relapses, then that would be a health improvement.
Is there disease activity index reduction from supplementing with Vitamin C (pills vs food-source)? Is the effect increased by melatonin supplementation?
My IBD unexpectedly went into remission when I added orange juice to iron-rich meals to fight tiredness/anemia caused by rectal bleeding. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5886961/ https://pubmed.ncbi.nlm.nih.gov/31155592-ameliorative-effect-of-high-dose-vitamin-c-administration-on-dextran-sulfate-sodium-induced-colitis-mouse-model/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5408742/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4735700/ https://www.ncbi.nlm.nih.gov/pubmed/20676767 https://www.ncbi.nlm.nih.gov/pubmed/11697548
Diet has a big part to play with patients and disease.
I propose a medical professional research and develop a supplimental drink for crohns and uc patients to aid in digestive health that minimizes impact of allergens and reactions and promotes healing from the inside out.
I struggle eating pills that dont digest well, can a doctor not create something that takes guessing out of supplimenting diet by creating something specifically for crohns patients that includes good probiotics, essential vitamins and nutrients and is allergen and chemical free.
Are probiotics effective in people with total Colectomy and Short Gut Syndrome? And what type of probiotic is best for this condition or are they worth it at all.
After a long history of Surgery including Sepsis an unsettled gut means Nausea which means lack of appetite,which leads to fatigue etc...
What kind of medications/andor/diet can be beneficial for older Crohn's folks who have had multiple resections over the years and have a shorter bowel left?
Most all research seems to be preventive, and that is good for those who only have a few feet of good bowel left, but there is still nothing specific for management of Crohns short bowel people. There are alot of us who have been hanging around now 40+ years with 8 to 10 resections because surgery was the primary treatment (or steroids) in the 70's and 80's.
I have been using isagenix on and off for the past year. It has really help improve both my symptoms, pain, and energy levels since being diagnosed with crohns about 6 years ago.
Avoidance of Fiber is Associated with Greater Risk of Crohn's Disease Flare in a 6 Month Period
Prevalence of a Gluten-free Diet and Improvement of Clinical Symptoms in Patients with Inflammatory Bowel Diseases