In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Compare medications taken (and other medical conditions experienced) by IBD patients BEFORE symptoms of IBD began to greater understand causes of the disease.
Prevention is the best medicine!
Due to exposure of burn pits and toxic environments, many Veterans or the Iraq/Afghanistan era are experiencing negative bowel symptoms. Is this causation or correlation? What are the statistics and is this environmental factor being studied as a cause?
The use of a specialized technique in Physical therapy developed by Clear Passages to alleviate intestinal obstructions to prevent surgery and mediate obstruction symptoms.
I have used this therapy to alleviate symptoms of intestinal obstruction and alleviate symptoms associated with blockages. It has prevented me from having surgery twice now. I have had two surgeries in the past and the adhesions plus active crohn's predispose me to intestinal blockage and obstruction.
J-pouch surgery, as a final effort to mitigate UC symptoms, can be life-changing. However, it seems that little information is available describing the long-term outlook for patients who have had the procedure. With an increase in IBD diagnoses in children, it is safe to assume that rates of J-pouch surgeries in children will also increase. A longitudinal study following J-pouch patients for several years following their surgeries should be conducted to highlight any common complications or symptoms that appear over the course of time. This research would be especially significant for better advising younger patients and their caregivers.
Certain probiotic strains produce histamine, and others help break it down. We should study the efficacy of supplementation with probiotic strains known to break down histamine in controlling the incidence of flares.
So many people are told that probiotics are good for them. I have always been very sensitive to them. I recently discovered that some strains actually produce histamine in the body and - therefore - could have been contributing to my symptoms and flare ups. I would love to know if supplementing with the strains that break down histamine could reverse inflammation in the gut.
Might a woman first show symptoms and be diagnosed with ulcerative colitis after having a c-section?
I was first diagnosed and showed first symptoms after my c-section then was sick again after my second c-section
How does Crohn's affect or relate to endometriosis? Do the symptoms of one cause or exascerbate symptoms in the other?
I have read articles/studies about a linkage between the two but would like to know more about the relationship.
What treatments used for Crohn's Disease are more effective for symptoms that are primarily non-intestinal such as inflammatory arthritis, eye symptoms & skin rashes.
Current treatments seem to address intestinal symptoms and non-intestinal symptoms require additional symptomatic treatments. Too much & too imprecise.
Patients are buying and self-administering parasites, claiming that they have induced remission or reduced their symptoms. I'd like to see a scientific study that determines whether the use of parasites is safe and effective. If the anecdotal evidence can be verified in a study, then we may have another treatment option for IBD. If it is not safe and effective, then people ought to know so they don't self-administer something dangerous.
Every winter I spend 3 months vomiting, nauseous, and achy. My Dr. has said that I have IBS in addition to small bowel Crohn's. Do others with Crohn's disease experience these symptoms in the winter?
Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network - Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network
Symptom Clusters in Adults with Inflammatory Bowel Disease