Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

What treatments used for Crohn's Disease are more effective for symptoms that are primarily non-intestinal such as inflammatory arthritis, eye symptoms & skin rashes.

Current treatments seem to address intestinal symptoms and non-intestinal symptoms require additional symptomatic treatments. Too much & too imprecise.

Medications
last activity about 2 years ago
9    0
Proposed Idea              

What neurological complications are associated with Crohn's and Ulcerative Colitis?

By monitoring several IBD forums, I see that people frequently have questions about various neurological complications like numbness, tingling, nerve pains etc. Current research is mixed on whether or not there are neurological extra-intestinal manifestations of IBD.

Other
last activity over 2 years ago
0    1
Proposed Idea              

Research on how many people start out with IBD and then get one or more Auto Immune illnesses as well as multiple surgery complications from IBD/Ostomy and/or other Auto Immune illnesses

I've seen it happen over 100 times in all my years as an IBD advocate. Patients have IBD & one or more such as MS, or Lupus, or RA, Fibromyalgia, Diabetes, Lyme's, and more. I myself have Crohn's, Uveitis, Raynaud's & Acne Rosacea. Some of us are further compromised or vulnerable due to multiple surgeries and aging (females) complications such as Osteoporosis, adhesion formation, and more. This leaps off into mental health, financial stability and sexual functions.

Research Methods
last activity 7 months ago
1    0
Proposed Idea              

Can testing be performed on our children to determine if Crohn's Disease will be a factor in their lives? And if so, their risk percentage?

I'd like to know ahead of time the risks to my children, grandchildren, etc. of developing this disease. When my children date, it's often a question that comes up and can be scary to those contemplating children in the future.

Other
last activity about 3 years ago
9    0
Proposed Idea               Best Fit for Others

Why is crohn's disease most common in the terminal ileum?

Since crohn's disease appears to be site specific, a location analysis may yield some additional clues on what triggers the inflammation.

Procedures And Testing
last activity almost 4 years ago
1    1
Proposed Idea              

Test the effectiveness of anti-fungal medications on Crohn's Disease.

A study by David Underhill in "Cell Host & Microbe" suggests a link between Malassezia in the gut and Crohn's Disease. Crohn's patients had high concentrations of Malassezia on their intestinal walls compared to almost none in healthy patients. Adding this fungus to the gut in mice exacerbated inflammation seen in Crohn's.

Medications
last activity 8 months ago
0    0
Proposed Idea              

Better ways to treat small bowel Crohn's disease

For people with allergies to sulfa drugs and hate steroids! I do not approve of the cancer risk with biologic medicines either.

Medications
last activity 3 months ago
1    0
Studied              

The relationship of Crohn's Disease, oral birth control, and blood clotting disorders.

Blood clots on birth control are on the rise and Crohnies are especially vulnerable.

Women's Health
last activity almost 3 years ago
0    1
Proposed Idea              

How does Crohn's affect or relate to endometriosis? Do the symptoms of one cause or exascerbate symptoms in the other?

I have read articles/studies about a linkage between the two but would like to know more about the relationship.

Women's Health
last activity 9 months ago
0    0
Proposed Idea              

It was 40 years ago that I had surgery at the Cleveland Clinic by Dr. Fazio for Crohn's dis. I have diarrhea secondary to the surgery but have not had a recurrence. How common is this? All insurance policies say I must report that I have Crohn's.

Maybe patients can be cured. I think a survey of all patients who have had extensive surgical resection with temporary iliostomy may reveal that there is a chance for a cure.

Procedures And Testing
last activity almost 5 years ago
1    2

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Published Studies VIEW ALL
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

Read Study
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

Read Study
Evaluation of Gastrointestinal Patient Reported Outcomes Measurement Information System (GI-PROMIS) Symptom Scales in Patients with Crohn's Disease in CCFA Partners

Read Study

Active Studies VIEW ALL
Your search did not match any active studies.

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