In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Please resesrch chronic pouchitis in patients who have had total colectomies w/placement of ileal/ anal pouch.
Many of us pouchitis patients are still suffering post-op and had no idea this could happen to us.I have been suffering for 15 yrs.Thank You for your effort.Maybe a Dr. could speak on this also
Because so many Crohn's patients are on immunosuppressants, I am wondering if there are a lot of patients who have developed more allergies (to plants, animals, foods, etc.). Is this an issue?
Well, it's always dangerous to generalize from your own experience, but I would suspect that taking immunosuppressants over extended periods of time might have such an effect. It might be something physicians should be aware of and ask about, in order to help clients manage any reactions they might develop.
What are the best surveillance techniques after bowel resection surgery? When should medical treatment be initiated? How often should colonoscopies be performed?
It looks like the current research only recommends a colonoscopy 6-12 months post resection, but there is very little information as to how to monitor after that.
Since crohn's disease appears to be site specific, a location analysis may yield some additional clues on what triggers the inflammation.
It was 40 years ago that I had surgery at the Cleveland Clinic by Dr. Fazio for Crohn's dis. I have diarrhea secondary to the surgery but have not had a recurrence. How common is this? All insurance policies say I must report that I have Crohn's.
Maybe patients can be cured. I think a survey of all patients who have had extensive surgical resection with temporary iliostomy may reveal that there is a chance for a cure.
Strictures are a problem for many IBD sufferers. More non invasive methods to deal with these should be developed so that surgery or colon removal isn't pressured by doctors and to save the length of the colon as much as possible.
What is the most effective treatment for bile acid diarrhea, a common side effect of resection of the terminal ileum?
Thousands of people have had their terminal ileum removed due to Crohn's disease. Many (most?) of them suffer from bouts of extreme urgency due to excessive bile acid in the large intestine. Current treatments are marginally effective, and generally little used.
I have my colon removed because of Ulcerative Colitis in 1993, now I have a skin problem and they tell me is an autoimmune problem, could it be related with the Ulcerative Colitis?
Because other patients can be in the same situation and is important to know what to do