In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
I am going in for my first check up visit to the GI after being diagnosed with Crohn's Disease. What information should I bring with me so the visit is actually helpful to myself and the Dr? I have been on Humira for 2 months now, so I'm assuming I should have a list of the different side effects I've had, but should I also be bringing in a list of the foods I've been eating, sleep schedule etc?
Can GI tract be mapped to identify locations of specific nutrient absorption & areas of disease activity/damage be studied to determine likely deficiencies & appropriate supplements for individuals?
This could allow patients and providers a better understanding of what their specific disease damage and activity could be affecting and allow targeted vitamin/mineral nutritional supplementation to be prescribed, thus preventing or more effectively treating systemic complications of IBD and associated nutritional deficiencies affects on the body.
Certain probiotic strains produce histamine, and others help break it down. We should study the efficacy of supplementation with probiotic strains known to break down histamine in controlling the incidence of flares.
So many people are told that probiotics are good for them. I have always been very sensitive to them. I recently discovered that some strains actually produce histamine in the body and - therefore - could have been contributing to my symptoms and flare ups. I would love to know if supplementing with the strains that break down histamine could reverse inflammation in the gut.
While it may be a small subset of patients, the most commonly used treatments, biologics and immunomodulators may be too risky for IBD patient's who have had lymphoma. Alternative treatments need to be identified for this group.
Is there a relationship between Crohn's and chronic acne? Could long term antibiotic use for acne be associated with the development of Crohn's in young adults?
Acne is a common problem for many teenagers and young adults. It is important to get a better grasp on any possible relationships between inflammatory skin conditions such as acne and Crohn's.
By monitoring several IBD forums, I see that people frequently have questions about various neurological complications like numbness, tingling, nerve pains etc. Current research is mixed on whether or not there are neurological extra-intestinal manifestations of IBD.
What is the effect of vagus nerve stimulation in ulcerative colitis? What is the effect of an implanted VNS device on UC? What is the effect of a transcutaneous VNS device on UC?
Vagus nerve stimulation has been studied in Crohn's disease with promising results, and needs to be studied in ulcerative colitis, so that all patients with IBD may have access to this new therapy that has shown success even for patients who did not succeed on oral or IV medication. For example: https://www.newsday.com/news/health/crohns-drugs-feinstein-institute-1.20780533
Is it possible that zinc in galvanized potable water piping may be a factor in precipitating UC / Crohns? Alternatively, is it possible that stagnant water in galvanized piping might be a factor?
Three (3) flareups of IBD in my own past were all associated with moving into / living in domiciles which had been vacant for 2 - 6 months. All had galvanized water piping systems, and water was run / flushed for what seemed to be an appropriate time (10-15 mins.) prior to consumption.