In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Can a history of taking a lot of antibiotics result in wiping out your good gut bacteria and lead to IBD? Can probiitics or stool transplants protect from getting IBD or treat IBD?
Over prescribing of antibiotics starting in childhood has been a documented problem. If this could be contributing to the incidence of IBD, that would be important to know as a further deterrent. Also knowing what to do for patients who have no choice but to take a lot of antibiotics would be helpful. And if this is a subtype of causality, it could be specifically targeted for prevention and treatment.
Multiple doctors have recommended that I start treatment for my Crohn's disease. There are many options from diet change, steroids, and immonosuapresants. My CD is very active and I have already had two surgeries.
“Milk fats increase the amount of taurine conjugated bile acids that promote growth and metabolic activ ity of sulphate reducing, bile acid tolerant bacterial species, which in turn stimulate pathogenic immune responses in genetically susceptible hosts” Sartor, R. B. Nat. Rev. Gastroenterol. Hepatol. 9, (2012)
I kept very detailed notes on food and symptoms when I used diet to end a significant flare (6 mos.). I went into remission within 2 wks. Any researcher interested in notes?
useful addition to current research
When I was diagnosed with Crohn's, my GI told me that diets don't work. After my GI recommended Humira, I decided to try SCD before I tried such a potent medication. The diet started working within days and, by the end of the first month, most of my symptoms were gone. Today it's been over a year and a half since I've had any significant symptoms. I would like to know if SCD works for others and, if so, what percentage of patients.
Do those who have had surgery find their quality of life better with the ostomy or by stooling through the pouch?
I have a recent diagnosis of Ulcerative Colitis and think that I will need to have surgery in the near future.
Gives insight into options other than medication when nothing else has worked.
New research ive seen online indicates MAP could play a role in the cause of crohns. New research to detect and kill this bacteria may lead to a cure, better understanding, and better treatment for patients who are suffering from IBD.
My sister found out she has vasculitis along with crohn's (both are inflammatory diseases). What is co-incidence and how prevalent? This would be something we could figure out with the right questions and by mining this data. Armed with this info we can be prepared for other potential problems.
Mouth problems have been associated with IBD, however, these problems have historically been explained as a symptom of IBD. I would like the hypothesis tested that mouth problems (e.g. possibly due to an altered oral microbiome) may be a trigger of inflammation, and not a symptom (i.e. good oral hygiene is associated with less gut inflammation). Background information: It has been shown that the oral microbiome in IBD patients differs compared to healthy controls (https://www.ncbi.nlm.nih.gov/pubmed/21987382). Anecdotal evidence: I notice a worsening of symptoms when I do not regularly floss. I'm an epidemiologist, so I know there is little value in anecdotal evidence, but still wanted to share my thinking!
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease