In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Depression is a standard part of the impact of Crohn's disease, and living with Crohn's impacts many of the behaviors a person can do to manage depression. Is it possible that by removing sections of bowel, where much of our serotonin is found in our bodies, that patients are increasing the likelihood of living with depression and decreasing the impact of positive behavioral strategies (since their serotonin levels are so much lower)?
What are the treatment outcomes of using Accutane for treatment of resistant acne in adults with Crohn's Disease? Does the dosage and length of treatment time using Accutane impact Crohn's related symptoms?
There is conflicting evidence with small sample sizes and limited studies on the association between Accutane and Crohn's disease. Dermatologists and patients need to know best practice procedures and potential implications, and outcomes before using acne medications.
Is there a correlation between Adverse Childhood Experiences (ACEs) and Crohn's Disease later in life.
In my understanding there is a strong correlation between ACEs and auto-immune illnesses. I wonder if the same correlation is maintained when focusing on Crohn's Disease.
I've been suffering with morning nausea the last 5-6 years in the winter. My Dr. says it's not my Crohn's. That appears to be in remission with imaging. I am seeing many forums online where others are suffering from nausea/vomiting intermittently with their Crohn's disease where it will last for a few months, then go away.
What is the most effective treatment for bile acid diarrhea, a common side effect of resection of the terminal ileum?
Thousands of people have had their terminal ileum removed due to Crohn's disease. Many (most?) of them suffer from bouts of extreme urgency due to excessive bile acid in the large intestine. Current treatments are marginally effective, and generally little used.
Is there a correlation between the incidence of Crohn's Disease in those whose homes use well water?
I became ill, and was eventually diagnosed with Crohn's Disease, after 2 yrs of living in homes with well water.
I am a Jewish male born and brought up in the United States. Is there any connection between my grandparents who mostly came from Europe, Latvia, Riga and Ireland and Crohn's disease?
What is the reason for my genetic mechanism to display as a Crohn's disease member?
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases
Evaluation of Gastrointestinal Patient Reported Outcomes Measurement Information System (GI-PROMIS) Symptom Scales in Patients with Crohn's Disease in CCFA Partners