Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Why some women with Crohn's Disease achieve remission, during the second and third trimester of pregnancy, then flare months after giving birth.

Because, it happened to me with both of my.pregnancies. During my first trimester, I had to be hospitalized with partial obstruction. After that, I was healthier than I'd been in years, until a few months after giving birth.

Women's Health
last activity over 2 years ago
1    1
Proposed Idea              

Develop non-invasive methods to remove hemorrhoids and perianal skin tags from IBD patients without the risk of ulcers, harm to sphincter, etc.

IBD patients are more much more likely to get hemorrhoids and skin tags (up to 37% of Crohn's and 25% of Colitis patients get skin tags - whereas only 4.4% of the general population gets hemorrhoids). But IBD patients either don't get them removed, or else risk significant harm in doing so. Innovative methods are needed to address the needs of this significant patient base.

Procedures And Testing
last activity over 2 years ago
11    0
Proposed Idea              

Can better tests be developed to confirm Crohn's and IBS-D diagnoses do or do not exist in patients?

Either diagnosis can take several rounds and types of testing which can take significant time and money. Additionally, when a patient has both conditions, the time to correct diagnosis and treatment is significant.

Procedures And Testing
last activity about 3 years ago
5    0
Proposed Idea              

What is the best way to prepare for a Doctors visit with IBD?

I am going in for my first check up visit to the GI after being diagnosed with Crohn's Disease. What information should I bring with me so the visit is actually helpful to myself and the Dr? I have been on Humira for 2 months now, so I'm assuming I should have a list of the different side effects I've had, but should I also be bringing in a list of the foods I've been eating, sleep schedule etc?

Other
last activity about 3 years ago
3    1
Proposed Idea              

The use of a specialized technique in Physical therapy developed by Clear Passages to alleviate intestinal obstructions to prevent surgery and mediate obstruction symptoms.

I have used this therapy to alleviate symptoms of intestinal obstruction and alleviate symptoms associated with blockages. It has prevented me from having surgery twice now. I have had two surgeries in the past and the adhesions plus active crohn's predispose me to intestinal blockage and obstruction.

Alternative Therapies
last activity 10 months ago
4    0
Proposed Idea              

Does Coal Fly Ash and Heavy Metals play a factor in causing Crohn's along with Black Mold and Bacterium?

No one mentions this and I believe it is the 4th factor in causing Crohn's.

Environment
last activity over 2 years ago
1    1
Diet
last activity over 4 years ago
3    1
Proposed Idea              

Is there a relationship between Crohn's and chronic acne? Could long term antibiotic use for acne be associated with the development of Crohn's in young adults?

Acne is a common problem for many teenagers and young adults. It is important to get a better grasp on any possible relationships between inflammatory skin conditions such as acne and Crohn's.

Other
last activity 11 months ago
22    0
Proposed Idea              

Is there a relationship between maternal, fetal, or early childhood infection and the development of IBD later in life?

My mother contracted shingles when she was pregnant with me. I believe my Crohn's could potentially be related to prenatal immune stress caused by my mother's infection. Mothers and fetuses share hormones, immune cells and other factors that could impact the development of the immune system in the fetus. A potential mechanism for this could involve epigenetic changes in the expression of genes related to immunity.

Women's Health
last activity almost 3 years ago
9    0
Proposed Idea              

What neurological complications are associated with Crohn's and Ulcerative Colitis?

By monitoring several IBD forums, I see that people frequently have questions about various neurological complications like numbness, tingling, nerve pains etc. Current research is mixed on whether or not there are neurological extra-intestinal manifestations of IBD.

Other
last activity over 2 years ago
0    1

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Published Studies VIEW ALL
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

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Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

Read Study
Evaluation of Gastrointestinal Patient Reported Outcomes Measurement Information System (GI-PROMIS) Symptom Scales in Patients with Crohn's Disease in CCFA Partners

Read Study

Active Studies VIEW ALL
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