Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

Are there many Crohn's patients who have hypercoagulation as an extra intestinal manifestation ?

It can cause many problems that are helped by current Crohn's medications.

Other
last activity over 1 year ago
0    0
Proposed Idea              

What are the short term/long term effects of less-than-prescribed medication adherence?

Obviously medication is prescribed a certain way for a reason. However, I am not alone when it comes to the need to reduce my medicine due to expense. I'm curious if, for example, it is better to take 2 pills of 4 prescribed/day or 4/day every other day. I just want to know the safest bet.

Medications
last activity over 1 year ago
0    0

Which herbal remedies have been used to effectively treat IBD?

I have had amazing success in treating my UC with an herbal formula (called Isatis Cooling) for about 15 years and wish that other people knew of this option. I understand that many other people have had similar success, however the medical community generally does not make patients aware of such options (even as a last resort prior to surgery or medications with known severe adverse side effects). It seems that their reasoning is that they are not aware of these options, or if they have heard of them (and their anecdotal effectiveness) they still do not even mention them to others because there is no "scientific evidence" to support their effectiveness or safety. I feel this is a disservice to patients. Doctors should be aware of the range of available options and help to spread this information (even with caveats about the lack of study), as mine thankfully did. In the best case, studies should be done on the effectiveness and safety of herbal remedies.

Alternative Therapies
last activity about 4 years ago
1    1
Proposed Idea              

A great deal of research has been done that showed that dog visits to hospitals boosted mood and reduced pain, anxiety and depression. Does having a dog reduce pain and depression for Crohn's or IBD?

I have had reactions to the biologics and I am concerned about the risk of cancer, as it runs in my family. I have also had reactions to pill medications so my treatment options are limited.

Alternative Therapies
last activity over 1 year ago
0    0
Procedures And Testing
last activity over 1 year ago
0    0
Alternative Therapies
last activity over 1 year ago
0    0
Proposed Idea              

can UC patients end up having Thyroid Disorders later in life. Like Graves Disease

I have UC and waiting to hear if I now have Graves Disease.

Other
last activity almost 3 years ago
2    0
Proposed Idea              

Are their any links between Crohns patients and their family having history of Autism including children?

Genetics
last activity over 1 year ago
0    0
Proposed Idea              

What is the difference between diseased/inflamed tissue in Crohn's or UC and the seemingly healthy tissue WITHIN THE SAME PERSON?

This is important because in many cases of IBD, there is healthy tissue. I had UC covering only half my colon. Why was the other half of it healthy? What was going on within that tissue that left it healthy and intact rather than inflamed? Why does UC spread over time if uncontrolled? Why isn't the whole colon/intestinal tract inflamed all the time?

Other
last activity over 2 years ago
3    0
Proposed Idea              

There should be a research study on non-tch high anti-inflammatory marijuana.

It is important to research various anti-inflammatory options.

Alternative Therapies
last activity 12 months ago
3    0

Propose Research Idea


Published Studies VIEW ALL
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

Read Study
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

Read Study
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease

Read Study

Active Studies VIEW ALL
The Effects of Antidepressant Medication and Social Support on Disease Progression in IBD Patients

Read Study
Symptom Clusters in Adults with Inflammatory Bowel Disease

Read Study
Psychological Factors Associated with Adherence to Oral Treatment in IBD

Read Study

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