In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
I have UC and waiting to hear if I now have Graves Disease.
Is there a correlation between the incidence of Crohn's Disease in those whose homes use well water?
I became ill, and was eventually diagnosed with Crohn's Disease, after 2 yrs of living in homes with well water.
What is the difference between diseased/inflamed tissue in Crohn's or UC and the seemingly healthy tissue WITHIN THE SAME PERSON?
This is important because in many cases of IBD, there is healthy tissue. I had UC covering only half my colon. Why was the other half of it healthy? What was going on within that tissue that left it healthy and intact rather than inflamed? Why does UC spread over time if uncontrolled? Why isn't the whole colon/intestinal tract inflamed all the time?
It is important to research various anti-inflammatory options.
Rat models of IBD usually can't get into this because of the way they induce colitis is different than how humans get UC. Why does UC generally start in the rectum and move its way upward? What causes it to often start there and then what causes it to spread?
For those with temporary ilieostomies, we should study treatment options available for healing and maintaining the health of the colon while it is disconnected.
For those hoping to reverse their ilieostomies, there is no guidance on how to ensure the best chance for the disconnected colon to heal so that reversal of the ostomy is possible.
I thinknit is hard for some teens to talk about their bowel movements and can go for years without diagnosis. Ii had the liq stools, abd pain, for 15 years, followed by another 10 years. It went unreported Thru 6 years of bloody stools, before i was brave enough to say anything.
I think this is a very ignored problem and there is a great lack of research about how mercury affects different individuals. There is an amount that is classified as safe but is there a genetic factor also that causes different people to react differently or cause or aggravate disease in certain genetic subjects?
Social Media Use and Preferences in Patients With Inflammatory Bowel Disease
Crohn’s and Colitis Foundation of America Partners Patient-Powered Research Network - Patient Perspectives on Facilitators and Barriers to Building an Impactful Patient-Powered Research Network