In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Obviously medication is prescribed a certain way for a reason. However, I am not alone when it comes to the need to reduce my medicine due to expense. I'm curious if, for example, it is better to take 2 pills of 4 prescribed/day or 4/day every other day. I just want to know the safest bet.
A great deal of research has been done that showed that dog visits to hospitals boosted mood and reduced pain, anxiety and depression. Does having a dog reduce pain and depression for Crohn's or IBD?
I have had reactions to the biologics and I am concerned about the risk of cancer, as it runs in my family. I have also had reactions to pill medications so my treatment options are limited.
Rat models of IBD usually can't get into this because of the way they induce colitis is different than how humans get UC. Why does UC generally start in the rectum and move its way upward? What causes it to often start there and then what causes it to spread?
I have my colon removed because of Ulcerative Colitis in 1993, now I have a skin problem and they tell me is an autoimmune problem, could it be related with the Ulcerative Colitis?
Because other patients can be in the same situation and is important to know what to do
Are supplements effective to reduce inflammation, minimize irritants, and promote mucosal healing in the gut? (tumeric, boswellia, bovine colostrum/igg, glutamine, essential oils)?
Patients can get extra non rx support in a flare or use this to maintain healthy gut.
Is there a correlation between the incidence of Crohn's Disease in those whose homes use well water?
I became ill, and was eventually diagnosed with Crohn's Disease, after 2 yrs of living in homes with well water.
For those with temporary ilieostomies, we should study treatment options available for healing and maintaining the health of the colon while it is disconnected.
For those hoping to reverse their ilieostomies, there is no guidance on how to ensure the best chance for the disconnected colon to heal so that reversal of the ostomy is possible.
I thinknit is hard for some teens to talk about their bowel movements and can go for years without diagnosis. Ii had the liq stools, abd pain, for 15 years, followed by another 10 years. It went unreported Thru 6 years of bloody stools, before i was brave enough to say anything.
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease