In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Food is a major creator to our symptoms and without proper knowledge of what is upsetting our immune systems and causing our inflammation we will continue to suffer. I've currently been researching food intolerance tests and found as all things there are good and bad opinions towards the different food intolerance methods but in my reading I discovered many believe the tests are not entirely conclusive. If we created a test to easily determine the foods that cause us any irritation we would have a much better chance of going into remission by avoiding the foods that create inflammation.
Many people seem to have less disease activity when they switch to a diet that restricts sugar, wheat or grains. Could there be a connection between high insulin levels (with or without diabetes)?
Yogurt, sauerkraut, kimchee have naturally active micro flora and have restorative properties in healthy digestive tracts. Can they help maintain remission?
I have been tested negative for celiac and gluten sensitivity, yet avoiding gluten improved my flare-ups, symptoms, and overall quality of life tremendously.
What is the nutritional impact (loss of nutrients) which a person with IBD (Ulcerative Colitis) experiences when their Colitis is in remission.
I have been in remission for 6 years, yet I seem to not be absorbing Potassium, producing Vitamin D - even though I work outdoors year round in a city that claims 360 days of sunshine, and seem to not be absorbing several other minerals. I suffer from chronic continuous calcium oxalate kidney stones due to calcium binding with oxalate instead of magnesium citrate or potassium citrate. The nutritional absorption in the colon would be especially useful for drs to treat patients like me as medication absorption also seems to be an issue.
Develop nutritionally sound and bio-available nutritional supplement(s) addressing long term health issues associated with poor vitamin/ mineral/ nutrient absorption due to rapid transit time, medication and/ or scarring of the intestinal lining.
Long term chronic IBD often includes development of nutritional deficiencies due to diet, eating patterns, medication side effects and intestinal scarring which are difficult to overcome using traditional supplements due to low bio-availability, supplement form, difficulty incorporating into liquid, soft or normal diet, nutritional completness.
I have my colon removed because of Ulcerative Colitis, I want to know what kind of supplements (vitamins) I need to take, which are the ones that absorbes thru the colon and I will not have enough.
Because other patients can be in the same situation and is important to know what to do
I propose a study of a non-GMO diet for Crohn's and UC patients. With an emphasis on understanding the rising rate of diagnosis in the US and Asia regions versus the EU region which has banned GMO.
Provide data which could should a causal effect in the increase of diagnosis in specific regions which allow GMO products.
Is there disease activity index reduction from supplementing with Vitamin C (pills vs food-source)? Is the effect increased by melatonin supplementation?
My IBD unexpectedly went into remission when I added orange juice to iron-rich meals to fight tiredness/anemia caused by rectal bleeding. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5886961/ https://pubmed.ncbi.nlm.nih.gov/31155592-ameliorative-effect-of-high-dose-vitamin-c-administration-on-dextran-sulfate-sodium-induced-colitis-mouse-model/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5408742/ https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4735700/ https://www.ncbi.nlm.nih.gov/pubmed/20676767 https://www.ncbi.nlm.nih.gov/pubmed/11697548
Diet has a big part to play with patients and disease.
Prevalence of a Gluten-free Diet and Improvement of Clinical Symptoms in Patients with Inflammatory Bowel Diseases
Dietary Patterns and Self-Reported Associations of Diet with Symptoms of Inflammatory Bowel Disease.