In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
What is the importance of Vitamin A supplementation (and at what level) on IBD remission and healing after a flair. Also, its use to offset the retardation of healing with prednisone use.
Could a valuable addition to a treatment regiment and possibly even a preventative.
Athletes who regulary compete at high levels often use ice baths to help in recovery. New systems have been created to replicate the benefits of ice baths. These systems, such as Cryo-chambers can achieve similar benefits to ice baths. Many professional athletes are using this system to recover faster for game day. I had the opportunity to try a whole body cryo treatment (2 minutes long) and within a day I noticed a decrease in IBD symptoms. I feel that the anti-inflammatory effect of cryo treatments could be a useful strategy in helping to minimize symptoms of IBD.
Patients are buying and self-administering parasites, claiming that they have induced remission or reduced their symptoms. I'd like to see a scientific study that determines whether the use of parasites is safe and effective. If the anecdotal evidence can be verified in a study, then we may have another treatment option for IBD. If it is not safe and effective, then people ought to know so they don't self-administer something dangerous.
It's a fundamentally different treatment in that it doesn't suppress it, it helps modulate it.
Stem Cell therapy is showing promise for many medical issues. It would be nice if it applies to IBD
I have had amazing success in treating my UC with an herbal formula (called Isatis Cooling) for about 15 years and wish that other people knew of this option. I understand that many other people have had similar success, however the medical community generally does not make patients aware of such options (even as a last resort prior to surgery or medications with known severe adverse side effects). It seems that their reasoning is that they are not aware of these options, or if they have heard of them (and their anecdotal effectiveness) they still do not even mention them to others because there is no "scientific evidence" to support their effectiveness or safety. I feel this is a disservice to patients. Doctors should be aware of the range of available options and help to spread this information (even with caveats about the lack of study), as mine thankfully did. In the best case, studies should be done on the effectiveness and safety of herbal remedies.
It is important to research various anti-inflammatory options.
A great deal of research has been done that showed that dog visits to hospitals boosted mood and reduced pain, anxiety and depression. Does having a dog reduce pain and depression for Crohn's or IBD?
I have had reactions to the biologics and I am concerned about the risk of cancer, as it runs in my family. I have also had reactions to pill medications so my treatment options are limited.