Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

What portion of IBD patients also have IBS? How can IBS be accurately diagnosed in patients with IBD? How can patients/clinicians identify symptoms due to IBD versus IBS, and what treatments are best?

Irratable bowel syndrome (IBS) has many of the same symptoms as inflammatory bowel disease (IBD). Many patients with IBD may also experience IBS making it difficult to know how to treat given that the two conditions are managed differently. Clinicians sometimes attribute symptoms of abdominal pain or diarrhea to IBS without further investigation. I would like to see further study into why many patients continue to experience IBD symptoms when clinical signs suggest remission, and how to best manage these symptoms. I would also like to see how frequently IBS is inaccurately diagnosed.

Procedures And Testing
last activity 9 months ago
20    1
Proposed Idea              

The use of lglutamine in achieving remission and those who have used this as either the main factor or as a contributing factor

I believe this strongly helped me alongside a low fibre diet, avoiding all foods that my body is intolerant to (following food intolerance test) and using lglutamine for internal repair.

Alternative Therapies
last activity 9 months ago
5    2

I propose researching medical cannabis for both symptom management and clinical remission.

Several studies have already been done in Israel at the Meir Institute with very promising results. A placebo controlled study with medication-resistant patients showed a remission rate approximately the same as leading medications. (~50% clinical remission.) Creating safer medications that are also less expensive than current medications should be a high priority, particularly given the promising results, both clinical and anecdotal, and the rising approval of medical cannabis across the US.

Alternative Therapies
last activity 7 months ago
39    1
Proposed Idea              

Is there a correlation between the use of NSAIDS (Ibuprofen) or other medications known to cause a "leaky gut" and the onset/development of IBD?

I took a large amount of Ibuprofen throughout my teen years for migraines. I have been told that taking Ibuprofen now can cause me to come out of remission due to causing a leaky gut and so I am curious to see if these types of medications can cause or trigger the onset of IBD in adolescents or in patient who chronically take these forms of medications.

Medications
last activity about 1 year ago
5    0
Proposed Idea              

We need to find an effective way to properly detect our bodies food intolerance's.

Food is a major creator to our symptoms and without proper knowledge of what is upsetting our immune systems and causing our inflammation we will continue to suffer. I've currently been researching food intolerance tests and found as all things there are good and bad opinions towards the different food intolerance methods but in my reading I discovered many believe the tests are not entirely conclusive. If we created a test to easily determine the foods that cause us any irritation we would have a much better chance of going into remission by avoiding the foods that create inflammation.

Diet
last activity 9 months ago
41    0
Proposed Idea              

How do biologically active foods help control disease state?

Yogurt, sauerkraut, kimchee have naturally active micro flora and have restorative properties in healthy digestive tracts. Can they help maintain remission?

Diet
last activity over 1 year ago
11    0
Proposed Idea              

What is the success of remission for people* who have surgery, or resection, versus those who are treated by medications only? (*Note: people who qualify for surgery)

I heard from a parent of a teen with IBD that the doctor wanted to avoid surgery. I have been in remission for years after I had a resection.

Medications
last activity almost 3 years ago
9    1
Proposed Idea              

What is the nutritional impact (loss of nutrients) which a person with IBD (Ulcerative Colitis) experiences when their Colitis is in remission.

I have been in remission for 6 years, yet I seem to not be absorbing Potassium, producing Vitamin D - even though I work outdoors year round in a city that claims 360 days of sunshine, and seem to not be absorbing several other minerals. I suffer from chronic continuous calcium oxalate kidney stones due to calcium binding with oxalate instead of magnesium citrate or potassium citrate. The nutritional absorption in the colon would be especially useful for drs to treat patients like me as medication absorption also seems to be an issue.

Diet
last activity almost 3 years ago
16    0
Proposed Idea              

Could virtual colonoscopy replace conventional colonoscopy as a routine method of assessment for patients in remission?

Virtual colonoscopy is less invasive, reducing the risk of bowel perforation and eliminating the need for anesthesia.

Procedures And Testing
last activity 11 months ago
2    0

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Published Studies VIEW ALL
Trends and Characteristics of Clinical Trials Participation for Inflammatory Bowel Disease in the United States: A Report From IBD Partners

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Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

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Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

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Active Studies VIEW ALL
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