In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
I have been tested negative for celiac and gluten sensitivity, yet avoiding gluten improved my flare-ups, symptoms, and overall quality of life tremendously.
Does timing of colonoscopy affect ability to accurately diagnose UC new cases and/or flares of disease particularly if scheduled more than a couple of weeks out from onset or resolution of symptoms?
If mucosa is allowed to heal before procedure with biopsies, patient may be told either no dz or inactive dz when in fact tissue has healed in the time it took to get test scheduled and performed leading to under diagnosis or a delayed diagnosis. Should guidelines recommend a shorter timeline to procedure in suspected stable new cases or stable non urgent flares? Some gi docs schedules are booked out months in advance so delays in scheduling are common. If patients are told initially no disease but later symptoms resume, more tests procedures are required to eventually establish diagnosis and start treatment.
Why some women with Crohn's Disease achieve remission, during the second and third trimester of pregnancy, then flare months after giving birth.
Because, it happened to me with both of my.pregnancies. During my first trimester, I had to be hospitalized with partial obstruction. After that, I was healthier than I'd been in years, until a few months after giving birth.
Is there a correlation between women's monthly menstruation and IBD-related flares? If there is a correlation between these two event, what can be done to reduce flares and/or reduce flares severity?
As a woman with IBD, I have experienced a once monthly abdominal pain since being diagnosed with IBD that feels like it is intestinal and subsides after one part of the cycle concludes. GI's have confirmed they have noticed women w/IBD often complain of IBD pain at specific times in the menstrual cycle.
Certain probiotic strains produce histamine, and others help break it down. We should study the efficacy of supplementation with probiotic strains known to break down histamine in controlling the incidence of flares.
So many people are told that probiotics are good for them. I have always been very sensitive to them. I recently discovered that some strains actually produce histamine in the body and - therefore - could have been contributing to my symptoms and flare ups. I would love to know if supplementing with the strains that break down histamine could reverse inflammation in the gut.
How impactful is the financial burden of medication cost on medication adherence? What are the long term repercussions for patients who opt out of medication therapies?
The patient cost of commonly prescribed medications for the treatment of IBD often falls into Tier VI drug categories with higher out of pocket costs than standard co-pays. This expense may influence patients to opt out of proven therapies due to the nature of the expense leaving them vulnerable to increased flare rates and more frequent hospitalizations that ultimately cost more. Improving medication adherence on the front end could lead to an overall cost savings for patients and insurers alike.
Is it possible that zinc in galvanized potable water piping may be a factor in precipitating UC / Crohns? Alternatively, is it possible that stagnant water in galvanized piping might be a factor?
Three (3) flareups of IBD in my own past were all associated with moving into / living in domiciles which had been vacant for 2 - 6 months. All had galvanized water piping systems, and water was run / flushed for what seemed to be an appropriate time (10-15 mins.) prior to consumption.
Every winter I spend 3 months vomiting, nauseous, and achy. My Dr. has said that I have IBS in addition to small bowel Crohn's. Do others with Crohn's disease experience these symptoms in the winter?
Role of Nonsteroidal Anti-Inflammatory Drugs in Exacerbations of Inflammatory Bowel Disease
Avoidance of Fiber is Associated with Greater Risk of Crohn's Disease Flare in a 6 Month Period