In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Can better tests be developed to confirm Crohn's and IBS-D diagnoses do or do not exist in patients?
Either diagnosis can take several rounds and types of testing which can take significant time and money. Additionally, when a patient has both conditions, the time to correct diagnosis and treatment is significant.
I have noticed significant changes to the number and viscosity of stool output based on Atmospheric Pressure (flying), Barometric Pressure (ground) and Humidity re CD and esp Colostomy ballooning. Friends w/IBS have also noticed such changes. I can submit 2 related articles via email (how?) for reference. Robert Huber, Scottsdale AZ 480.551.0520 Ostomy@AllCampusCard.com
I am going in for my first check up visit to the GI after being diagnosed with Crohn's Disease. What information should I bring with me so the visit is actually helpful to myself and the Dr? I have been on Humira for 2 months now, so I'm assuming I should have a list of the different side effects I've had, but should I also be bringing in a list of the foods I've been eating, sleep schedule etc?
The use of a specialized technique in Physical therapy developed by Clear Passages to alleviate intestinal obstructions to prevent surgery and mediate obstruction symptoms.
I have used this therapy to alleviate symptoms of intestinal obstruction and alleviate symptoms associated with blockages. It has prevented me from having surgery twice now. I have had two surgeries in the past and the adhesions plus active crohn's predispose me to intestinal blockage and obstruction.
Is saccharomyces boulardii a possible alternative for many of the medications currently used for UC and Crohns?
I think this research is very important given the cost of medication currently prescribed for these illnesses not to mention the many side effects these drugs can have on a person's overall health.
Develop a SPECIAL TAPE that will help hold the osty appliance on the skin when your out-put is very watery and there is gas involved and your stoma is sucking in!
I have had a very BIG problem of appliances blowing (2 to 4 times per day) when the stoma is sucking in and the out-put is watery and gas is involved. When this is happening and you are changing that much your skin is raw. You are burning through appliances left and right (cost). Not to mention your physiological well being!!
Does Coal Fly Ash and Heavy Metals play a factor in causing Crohn's along with Black Mold and Bacterium?
No one mentions this and I believe it is the 4th factor in causing Crohn's.
Is there a correlation between women's monthly menstruation and IBD-related flares? If there is a correlation between these two event, what can be done to reduce flares and/or reduce flares severity?
As a woman with IBD, I have experienced a once monthly abdominal pain since being diagnosed with IBD that feels like it is intestinal and subsides after one part of the cycle concludes. GI's have confirmed they have noticed women w/IBD often complain of IBD pain at specific times in the menstrual cycle.
Is the use of probiotics significantly beneficial for IBD patients? If so, what types are most beneficial for mucosal healing and prevention of future disease activity?
Current treatments for IBD focus heavily on the body's immune response and "warding off" the disease. It is important to do what we can to heal the intestine after damage has occurred and prevent damage to the best of our ability.
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases