Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

The use of a specialized technique in Physical therapy developed by Clear Passages to alleviate intestinal obstructions to prevent surgery and mediate obstruction symptoms.

I have used this therapy to alleviate symptoms of intestinal obstruction and alleviate symptoms associated with blockages. It has prevented me from having surgery twice now. I have had two surgeries in the past and the adhesions plus active crohn's predispose me to intestinal blockage and obstruction.

Alternative Therapies
last activity 4 months ago
4    0
Proposed Idea              

Does Coal Fly Ash and Heavy Metals play a factor in causing Crohn's along with Black Mold and Bacterium?

No one mentions this and I believe it is the 4th factor in causing Crohn's.

Environment
last activity over 2 years ago
1    1
Proposed Idea              

Does the human microbiome affect the development of mastocytic enterocolitis in patients with inflammatory bowel disease?

My gastroenterologist and primary care doctor both suggest that they are seeing an increased number patients with IBD and mast cell colitis. As mastocytic enterocolitis is a relatively new diagnosis, there doesn't seem to be much information about causation yet.

Microbiome
last activity 8 months ago
1    0
Proposed Idea              

Is saccharomyces boulardii a possible alternative for many of the medications currently used for UC and Crohns?

I think this research is very important given the cost of medication currently prescribed for these illnesses not to mention the many side effects these drugs can have on a person's overall health.

Alternative Therapies
last activity over 3 years ago
4    1

Are biosimilars equally effective maintaining remission in patients who achieved remission with the “brand” TNF-blocker?

I was at a recent CCF educational session and the gastroenterologist giving a talk said that VA patients, stable on infliximab, were switched to the biosiomilar, presumably for cost. Some did not do was well after the switch. If someone is stable on a TNF-blocker, what is the risk of their illness worsening if switched to the biosimilar?

Medications
last activity almost 2 years ago
1    1
Proposed Idea              

Is the use of probiotics significantly beneficial for IBD patients? If so, what types are most beneficial for mucosal healing and prevention of future disease activity?

Current treatments for IBD focus heavily on the body's immune response and "warding off" the disease. It is important to do what we can to heal the intestine after damage has occurred and prevent damage to the best of our ability.

Microbiome
last activity over 1 year ago
3    0

How many IBD patients have ever been referred for counseling or offered an antidepressant by their gastroenterologist?

Depression and anxiety levels are very high in this population. Extending care to the whole person would make sense in managing disease and quality of life.

Lifestyle
last activity almost 4 years ago
7    1
Proposed Idea              

Can intermittent fasting improve outcome for IBD patients?

Intermittent fasting is an ancient and safe practice. Many studies have shown the health benefits of fasting for people with obesity and diabetes. Fasting helps stimulate human growth hormone. Could fasting improve the outcome of IBD patients?

Lifestyle
last activity 4 months ago
1    0
Proposed Idea              

Can GI tract be mapped to identify locations of specific nutrient absorption & areas of disease activity/damage be studied to determine likely deficiencies & appropriate supplements for individuals?

This could allow patients and providers a better understanding of what their specific disease damage and activity could be affecting and allow targeted vitamin/mineral nutritional supplementation to be prescribed, thus preventing or more effectively treating systemic complications of IBD and associated nutritional deficiencies affects on the body.

Other
last activity about 2 years ago
3    0
Proposed Idea              

Why isn't the BCIR procedure given as an option for patients who have severe UC that no longer are responding to meds?

In 2012 I had my colon removed due to Anal Cancer and Severe Ulcerative Colitis. I opted out of having Chemo and Radiation. My UC was so severe that I would have never made it through radiation treatments. Having to wear a bag was not what I wanted so I chose to get a BCIR under Dr. Rehnke at Palms of Pasadena in St. Petersburg, FL. It was the BEST decision I have ever made. I had UC for almost 30 years and suffered Daily. I feel as if I have a life now. My Quality of Life is unbelievable. There is nothing I can't do now. I don't have to memorize where bathrooms are anymore. I plan when I go to the bathroom instead of my body telling me when I go. It is amazing and I highly recommend it. I can not believe I suffered when this debilitating disease for so long. I had no idea about the BCIR. Everyone should know this is an option and can totally change your life. NO ONE should have to suffer like I did. Please let everyone know that this is an option. It is their choice from there on out, but at least people will know about it. It literally saved my life."

Procedures And Testing
last activity about 3 years ago
2    1

Propose Research Idea


Published Studies VIEW ALL
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

Read Study
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

Read Study
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease

Read Study

Active Studies VIEW ALL
The Effects of Antidepressant Medication and Social Support on Disease Progression in IBD Patients

Read Study
Symptom Clusters in Adults with Inflammatory Bowel Disease

Read Study
Psychological Factors Associated with Adherence to Oral Treatment in IBD

Read Study

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