In this area you will be able to:
- Propose, vote on, and discuss research ideas
- View current studies
- View published research
Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.
You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.
The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.
We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!
Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!
Given the increased interest and implications for altered gut microbiome in IBD, I think it is important that investigations into how surgical treatments affect the new digestive structures. Looking comparatively at pre-surgery microbiomes and post-surgery microbiomes may give insights into how to most effectively treat UC, should the mechanisms that cause the disease still act in the absence of a colon.
How likely is being put on Remicade for Crohn's Disease going to stop the recurrence of fistula's and abscesses to prevent having to have surgeries?
I have had four abscesses removed via surgery thus far and one fistula removed. However, another fistula has been found via a recent ultra sound I had done which I was told most likely will need to be treated with another surgery.
Yogurt, sauerkraut, kimchee have naturally active micro flora and have restorative properties in healthy digestive tracts. Can they help maintain remission?
What is the success of remission for people* who have surgery, or resection, versus those who are treated by medications only? (*Note: people who qualify for surgery)
I heard from a parent of a teen with IBD that the doctor wanted to avoid surgery. I have been in remission for years after I had a resection.
Research shows less colitis in mice eating high cellulose than mice eating low cellulose & Crohn’s symptoms stopped in 4 wks in 4 people eating a high cellulose (bran) cereal. Cellulose feeds good bacteria—does eating bran cereal help fix the microbiome?
Many people with Crohn's disease want to know what food to eat. There seems to be a lot of research about drugs and dietary supplements, but not much research to help people know what food to eat.
I am guessing it's complications and/or weight loss or failure of the immune system. Wondering if this is trackable in order to develop prevention ideas.
Has your inflammatory bowel disease diagnosis (and/or associated symptoms) influenced your preferred location of employment (home-based vs outside the home)?
I think it is important to consider how lifestyle changes influence the progression of IBD. Some diagnosed individuals may seek out jobs that allow them to work from home when symptomatic. This change in lifestyle itself may impact the progression of IBD in ways we don't yet understand. This question is increasingly important as the number of home-based employment opportunities is on the rise. Many jobs can be performed on a computer, and your employer saves money if they don't have to rent and heat an office for your to sit in. Thus, it is expected the trend of increasing home-based employment will continue.
What is unique about the histology and/or immunology of fistulas that limit their response to current immunomodulator therapies?
None of the currently approved or clinical stage immunotherapies for IBD have shown to offer substantive benefits in the improvement or healing of fistulas. This is continues to be a significant gap in the non-surgical treatment of fistulizing disease.
Intermittent fasting is an ancient and safe practice. Many studies have shown the health benefits of fasting for people with obesity and diabetes. Fasting helps stimulate human growth hormone. Could fasting improve the outcome of IBD patients?
I propose to look at the incidence of periodontal disease in IBD patients, and to examine if there is any correlation to the disease itself, or to medications used for disease control.
Anecdotally, there seems to be a positive correlation; however, hard data seems non-existent. With the known relationship between periodontal disease and heart disease, it would be important for IBD patients to know if this is an issue they need to stay on top of.
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases