Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Proposed Idea              

How does a patient's communication with their physician impact their quality of care? What communication techniques can be implemented in order to improve the patient-physician relationship?

Many patients find it difficult to talk to their physicians, this can prevent their doctors from knowing the full picture and may increase incorrect diagnoses or delay the diagnosis. Uncontrolled disease can be harder to control and controlling it correctly from the onset is crucial in disease management.

Other
last activity 6 months ago
11    1
Proposed Idea              

I propose new studies into the prevalence of MAP bacteria and its role in IBD.

New research ive seen online indicates MAP could play a role in the cause of crohns. New research to detect and kill this bacteria may lead to a cure, better understanding, and better treatment for patients who are suffering from IBD.

Microbiome
last activity about 1 year ago
14    3

What is the effect of endurance training and or general exercise on our disease activity/ disease path?

Finding ways to manage stress is arguably a generally good health process, so wouldnt that mean doing so for chronic disease is important? but is more, more or does it potentially harm when exceeding a certain level?

Lifestyle
last activity about 1 year ago
18    1

Is the gut flora of people with IBD similar to people with depression and/or anxiety? I propose exploring a connection between the microbiota associated with IBD and mental health disorders.

I believe this question to be important because disruption of the gut flora is implicated in autoimmune diseases, obesity and mental illness and finding connections could broaden the medical community's approach in treating all of the above. I also think the designation of these illnesses as primarily "western illnesses" is interesting, particularly given how our food system functions (antibiotic use in meat production, use of bleach on salad greens, etc).

Microbiome
last activity 3 months ago
29    1

What portion of IBD patients also have IBS? How can IBS be accurately diagnosed in patients with IBD? How can patients/clinicians identify symptoms due to IBD versus IBS, and what treatments are best?

Irratable bowel syndrome (IBS) has many of the same symptoms as inflammatory bowel disease (IBD). Many patients with IBD may also experience IBS making it difficult to know how to treat given that the two conditions are managed differently. Clinicians sometimes attribute symptoms of abdominal pain or diarrhea to IBS without further investigation. I would like to see further study into why many patients continue to experience IBD symptoms when clinical signs suggest remission, and how to best manage these symptoms. I would also like to see how frequently IBS is inaccurately diagnosed.

Procedures And Testing
last activity 9 months ago
20    1
Proposed Idea               Best Fit for Others

Are fecal transplants a safe and effective treatment for IBD?

Patients are experimenting with fecal transplants without the benefits of a scientific study determining effectiveness and safety. Can we pump more funds into understanding the role of microbes on IBD, and whether there is a safer way to introduce beneficial microbes into the gut?

Alternative Therapies
last activity 4 months ago
67    2
Proposed Idea              

Which medications are more effective at treating Crohn's disease?

Multiple doctors have recommended that I start treatment for my Crohn's disease. There are many options from diet change, steroids, and immonosuapresants. My CD is very active and I have already had two surgeries.

Medications
last activity over 1 year ago
3    2

How does disease activity and symptoms compare between patients with a vegan/vegetarian versus those who consume meat.

There are many various diets claiming health benefits but it's often difficult to compare complex diets. Vegan and vegetarian diets are simple dietary restrictions that are somewhat common and can be assessed more easily.

Diet
last activity 20 days ago
9    4

What other inflammatory diseases are expressed in UC and Crohn's sufferers?

My sister found out she has vasculitis along with crohn's (both are inflammatory diseases). What is co-incidence and how prevalent? This would be something we could figure out with the right questions and by mining this data. Armed with this info we can be prepared for other potential problems.

Genetics
last activity 18 days ago
11    1

Propose Research Idea


Published Studies VIEW ALL
Diet Low in Red and Processed Meat Does Not Reduce Rate of Crohn’s Disease Flares

Read Study
Impact of Obesity on Disease Activity andPatient-Reported Outcomes Measurement InformationSystem (PROMIS) in Inflammatory Bowel Diseases

Read Study
A Novel Patient-Reported Outcome-Based Evaluation (PROBE) of Quality of Life in Patients With Inflammatory Bowel Disease

Read Study

Active Studies VIEW ALL
The Effects of Antidepressant Medication and Social Support on Disease Progression in IBD Patients

Read Study
Symptom Clusters in Adults with Inflammatory Bowel Disease

Read Study
Psychological Factors Associated with Adherence to Oral Treatment in IBD

Read Study

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