Research Ideas  

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Welcome to IBD Partners Research Ideas Page!

In this area you will be able to:

  • Propose, vote on, and discuss research ideas
  • View current studies
  • View published research

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You are an active participant in  IBD Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you!

Here, you can submit a research idea to the community, cast your votes, and discuss research ideas proposed by other members. Please make your research question as specific as possible. Other members will vote on your research idea, and we will prioritize research ideas with the most votes.

You are allowed to vote for your own proposed research idea if you want. However, you can only vote for a total of five research ideas. If you have already cast your five votes and an idea you like even more is proposed, you can change your votes at any time to reflect your current preferences.

The research team will review all submitted ideas and provide a response to you and to the community. If your idea leads to an IBD Partners Study, you will have the opportunity to serve as a patient collaborator on the research team for that study.

We encourage you to prioritize the ideas that are most important to you, even if the research team determines that your idea is not a good fit for IBD Partners. We will share ideas labeled “Not a Good Fit” with researchers outside of our network when appropriate. We want to make sure all of your votes count!

Thanks for your participation in this important platform to help the IBD research community understand what research questions are important to patients. We are passionate about finding answers to your questions!

Is peppermint oil effective in prevention and treatment of pouchitis?

Peppermint oil has been used to treat GI conditions including IBS. Peppermint oil has many mechanisms of action which may make it effective in treating pouchitis. Peppermint oil is an antispasmodic, it is antibacterial, and anti inflammatory. Peppermint oil, delivered directly to the pouch, via a pH dependent delivery system may be effective in the management of pouchitis.

Alternative Therapies
last activity over 1 year ago
1    1
Proposed Idea              

What are the possibilities in QBECO SSI in the treatment of IBD?

It's a fundamentally different treatment in that it doesn't suppress it, it helps modulate it.

Alternative Therapies
last activity 28 days ago
0    0
Alternative Therapies
last activity almost 2 years ago
4    0
Proposed Idea              

Is Low Dose Allergy Immunotherapy helpful to people diagnosed with IBD?

It's described as a safe approach to healing auto-immune illnesses.

Alternative Therapies
last activity 2 months ago
0    0
Proposed Idea              

Are there potential therapies for IBD arising from the use of stem cells?

Stem Cell therapy is showing promise for many medical issues. It would be nice if it applies to IBD

Alternative Therapies
last activity 28 days ago
0    0
Proposed Idea              

Does Oregano Oil have any affect on IBD?

In IBD discussion groups Oregano Oil has come up as being very helpful for some people.. I have not been able to find a study verifying if this is true.

Alternative Therapies
last activity about 2 years ago
3    0
Proposed Idea              

Are parasites (like hook worms) a safe and effective treatment option for patients with IBD?

Patients are buying and self-administering parasites, claiming that they have induced remission or reduced their symptoms. I'd like to see a scientific study that determines whether the use of parasites is safe and effective. If the anecdotal evidence can be verified in a study, then we may have another treatment option for IBD. If it is not safe and effective, then people ought to know so they don't self-administer something dangerous.

Alternative Therapies
last activity about 1 year ago
11    0

Which herbal remedies have been used to effectively treat IBD?

I have had amazing success in treating my UC with an herbal formula (called Isatis Cooling) for about 15 years and wish that other people knew of this option. I understand that many other people have had similar success, however the medical community generally does not make patients aware of such options (even as a last resort prior to surgery or medications with known severe adverse side effects). It seems that their reasoning is that they are not aware of these options, or if they have heard of them (and their anecdotal effectiveness) they still do not even mention them to others because there is no "scientific evidence" to support their effectiveness or safety. I feel this is a disservice to patients. Doctors should be aware of the range of available options and help to spread this information (even with caveats about the lack of study), as mine thankfully did. In the best case, studies should be done on the effectiveness and safety of herbal remedies.

Alternative Therapies
last activity almost 4 years ago
1    1
Proposed Idea              

A great deal of research has been done that showed that dog visits to hospitals boosted mood and reduced pain, anxiety and depression. Does having a dog reduce pain and depression for Crohn's or IBD?

I have had reactions to the biologics and I am concerned about the risk of cancer, as it runs in my family. I have also had reactions to pill medications so my treatment options are limited.

Alternative Therapies
last activity about 1 year ago
0    0

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