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Being Researched

Welcome to CCFA Partners Research Page!

In this area you will be able to:

  • Participate in our research prioritization process
  • View current and completed studies
  • View a summary of your research contributions

You are an active participant in  CCFA Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you. Here, you can submit a research question to the community, cast your votes, and discuss research questions proposed by other members. Please make your research question as specific as possible. Other members will vote on your research question, and research questions with the most votes will be prioritized by network researchers.

You are allowed to vote for your own proposed research questions if you want. However, you can only vote for a total of five research questions. If you have already cast your five votes and a question you like even more is proposed, you can change your votes at any time to reflect your preferences.

In addition to suggesting and voting on research questions, you contribute to our research by filling out 6-month surveys and by updating your health information each time you login. View your personal health data contributions to research under the My Contributions tab.

The Data Access Log allows you to view a list of network researchers who have ever accessed your de-identified data* and for what purpose. This is a great place to see how your research contributions are helping answer important research questions related to IBD!

* “De-identified data” refers to data that does not include information that could identify you as an individual, such as your name and address.

Posted On Question
January 20, 2017 Is peppermint oil effective in prevention and treatment of pouchitis?
Leave a comment - Alternative Therapies - 2 days ago
January 10, 2017 Comorbidities of Neurological conditions and IBD
Leave a comment - Microbiome - 12 days ago
January 8, 2017 Do patients have better control of their disease when they communicate with other patients (via support groups, camps, online forums, etc)?
Leave a comment - Lifestyle - 14 days ago
November 7, 2016 Are there any IBD patients who are on the Paleo or Specific Carbohydrate Diet? Has this diet positively affected your symptoms?
View 5 comments - Diet - 3 months ago
November 6, 2016 What is the long term effectiveness of bowel resection as a treatment? What % of people are in remission at intervals of decades following surgery? What factors lead to longer periods of remission?
View 3 comments - Other - 3 months ago
October 30, 2016 What is the reason for the increased Incidence of Ibd for Jews?
Leave a comment - Genetics - 3 months ago
October 24, 2016 Would like to see more research on IBD and medications as we get older. Since the population is aging, side effects occur as a result. Most research stops after 10 yrs.
View 1 comment - Other - 3 months ago
August 14, 2016 Is it possible that zinc in galvanized potable water piping may be a factor in precipitating UC / Crohns? Alternatively, is it possible that stagnant water in galvanized piping might be a factor?
View 1 comment - Other - 5 months ago
August 12, 2016 Why is Crohn's disease being diagnosed so much more frequently in the past 2-5 years? Is it better diagnostics and understanding of the disease or that more drugs are being made to treat it?
Leave a comment - Other - 5 months ago
August 10, 2016 Why isn't the BCIR procedure given as an option for patients who have severe UC that no longer are responding to meds?
View 1 comment - Procedures And Testing - 5 months ago
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Vote on research topics above to have them be reviewed by researchers for study. Research topics with a green label have already been reviewed by researchers. Click on the topic to read comments from the research team. Don't forget you can propose your own topics, too.

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