Community Contributions
Proposed Questions
Votes Cast
Total Comments
Being Researched

Welcome to CCFA Partners Research Page!

In this area you will be able to:

  • Participate in our research prioritization process
  • View current and completed studies
  • View a summary of your research contributions

You are an active participant in  CCFA Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you. Here, you can submit a research question to the community, cast your votes, and discuss research questions proposed by other members. Please make your research question as specific as possible. Other members will vote on your research question, and research questions with the most votes will be prioritized by network researchers.

You are allowed to vote for your own proposed research questions if you want. However, you can only vote for a total of five research questions. If you have already cast your five votes and a question you like even more is proposed, you can change your votes at any time to reflect your preferences.

In addition to suggesting and voting on research questions, you contribute to our research by filling out 6-month surveys and by updating your health information each time you login. View your personal health data contributions to research under the My Contributions tab.

The Data Access Log allows you to view a list of network researchers who have ever accessed your de-identified data* and for what purpose. This is a great place to see how your research contributions are helping answer important research questions related to IBD!

* “De-identified data” refers to data that does not include information that could identify you as an individual, such as your name and address.

Posted On Question
May 11, 2017 Has your inflammatory bowel disease diagnosis (and/or associated symptoms) influenced your preferred location of employment (home-based vs outside the home)?
Leave a comment - Lifestyle - about 1 month ago
May 9, 2017 Did the Holocaust have to do with the rise in IBD?
View 1 comment - Genetics - about 1 month ago
May 8, 2017 The prevelance of careeganan in the diets of those who have developed Colitis / chrones. Secondly how foods with this present effects the prevelance of associated symptoms
View 1 comment - Diet - about 2 months ago
April 27, 2017 I'd like to see a study that investigates the children of male amd female Vietnam vers exposed to agent orange. I was the ONLY member of my family with UC/Chrohns. Now me + my daughters. My dad is a
Leave a comment - Genetics - about 2 months ago
April 15, 2017 What is the relationship of early life conditions (smoking parents, even during pregnancy, ameba infections, long term constipation, appetite problems) with development of IBD?
Leave a comment - Environment - 2 months ago
April 12, 2017 Association between oral hygiene and gut inflammation
Leave a comment - Lifestyle - 2 months ago
April 9, 2017 Does IBD impact the absorption and pharmacokinetics or oral medications?
View 1 comment - Medications - 2 months ago
March 24, 2017 Has low dose Naltrexone been studied for efficacy in IBD?
View 1 comment - Medications - 3 months ago
March 7, 2017 diet for UC and diabetes
View 1 comment - Diet - 4 months ago
February 10, 2017 Can better tests be developed to confirm Crohn's and IBS-D diagnoses do or do not exist in patients?
Leave a comment - Procedures And Testing - 4 months ago
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Vote on research topics above to have them be reviewed by researchers for study. Research topics with a green label have already been reviewed by researchers. Click on the topic to read comments from the research team. Don't forget you can propose your own topics, too.

My Questions

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