Community Contributions
Proposed Questions
Votes Cast
Total Comments
Being Researched

Welcome to CCFA Partners Research Page!

In this area you will be able to:

  • Participate in our research prioritization process
  • View current and completed studies
  • View a summary of your research contributions

You are an active participant in  CCFA Partners research prioritization process! Have you ever had a question about IBD that you wish science could answer? Tell us what research is important to you. Here, you can submit a research question to the community, cast your votes, and discuss research questions proposed by other members. Please make your research question as specific as possible. Other members will vote on your research question, and research questions with the most votes will be prioritized by network researchers.

You are allowed to vote for your own proposed research questions if you want. However, you can only vote for a total of five research questions. If you have already cast your five votes and a question you like even more is proposed, you can change your votes at any time to reflect your preferences.

In addition to suggesting and voting on research questions, you contribute to our research by filling out 6-month surveys and by updating your health information each time you login. View your personal health data contributions to research under the My Contributions tab.

The Data Access Log allows you to view a list of network researchers who have ever accessed your de-identified data* and for what purpose. This is a great place to see how your research contributions are helping answer important research questions related to IBD!

* “De-identified data” refers to data that does not include information that could identify you as an individual, such as your name and address.

Posted On Question
February 10, 2017 Can better tests be developed to confirm Crohn's and IBS-D diagnoses do or do not exist in patients?
Leave a comment - Procedures And Testing - 14 days ago
February 3, 2017 Does Oregano Oil have any affect on IBD?
Leave a comment - Alternative Therapies - 20 days ago
February 3, 2017 Is there a correlation between UC and poor circulation in feet and/or hands?
View 1 comment - Other - 20 days ago
January 29, 2017 What is the effectiveness of CBDs in treating a IBD flair or in preventing one?
View 1 comment - Medications - 25 days ago
January 28, 2017 Being adopted in the early 70's when closed adoptions were the norm, I have not gone to any lengths to find my bio couple. I have never needed to. I have wonderful parents and sibs (also adopted).
Leave a comment - Genetics - 26 days ago
January 20, 2017 Is peppermint oil effective in prevention and treatment of pouchitis?
Leave a comment - Alternative Therapies - about 1 month ago
January 10, 2017 Comorbidities of Neurological conditions and IBD
View 1 comment - Microbiome - about 1 month ago
January 8, 2017 Do patients have better control of their disease when they communicate with other patients (via support groups, camps, online forums, etc)?
View 2 comments - Lifestyle - about 2 months ago
November 7, 2016 Are there any IBD patients who are on the Paleo or Specific Carbohydrate Diet? Has this diet positively affected your symptoms?
View 6 comments - Diet - 4 months ago
November 6, 2016 What is the long term effectiveness of bowel resection as a treatment? What % of people are in remission at intervals of decades following surgery? What factors lead to longer periods of remission?
View 4 comments - Other - 4 months ago
Your Votes
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Vote on research topics above to have them be reviewed by researchers for study. Research topics with a green label have already been reviewed by researchers. Click on the topic to read comments from the research team. Don't forget you can propose your own topics, too.

My Questions

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