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Do you have Crohn's disease or ulcerative colitis? Join other patients and the IBD research community to help us all learn more about IBD together.

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IBD Partners Governance and Leadership


Our governance structure is described here and reflects shared leadership among patients, researchers, and the Crohn's & Colitis Foundation. Click on each committee name to see a list of current members.

Role: Responsible for day-to-day study activities. The Research Team develops and implements surveys, provides advice about associated studies, analyzes data, prepares manuscripts for publications, and presents research at scientific meetings.

Role: Responsible for website development and continued enhancements. The Technical Team is also responsible for day-to-day operations associated with survey implementation, website functionality and data security.

Role: Responsible for ensuring that the IBD Partners Research Initiative is carried out in accordance with the Crohn's & Colitis Foundation’s mission.
* Members in the Oversight Committee are selected by the Crohn's & Colitis Foundation.

  • Jean-Fred Colombel
  • Stephen Hanauer
  • Caren Heller
  • Scott Snapper

Role: Key responsibilities include: 1) defining the mission of the network, 2) helping to identify what research questions are most important to answer, 3) working with other governance committees to develop policies regarding use of and sharing of network information, 4) advising the network on the development of plans to facilitate communications among network participants, and 5) receiving and acting upon input from a large number of network participants.
*Members of the Patient Governance Committee are IBD patients.

Role: Responsible for the evaluation of research projects, which includes deciding if a project should be approved, denied, or revised and resubmitted. Proposals are reviewed by one member of the Research Team, two additional members of the Scientific committee, and one patient member.
*Members of the Project Selection Committee include patients, scientists, and Crohn's & Colitis Foundation representatives.

Role: Responsible for providing input and guidance on project study selection in areas where there may be perceived conflict of interest. The Ethics Committee will also provide input on policies regarding use and sharing of network data.